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We are slowly getting some news coverage of Long Covid here in Norway. Sick leave due to "tiredness" is up with 26% and there are between 30 000 and 60 000 children with long term school absence. The clinic that offers the treatment from the study, Helse i Hardanger, is presented in the media as...

Yes! That's the one. Here's automatic translation of the Norwegian text in the first image: Is deferred publicity applied for? yes What is the justification for the application for deferred publicity? for the sake of ongoing research work Elaborate on the rationale and state the...

Science education researcher Unni Eikeseth has shared Steinkopf's blog post on Twitter and comments (automatically translated) : ME journalism in Norway is a scandal. Where is the power-critical look from the press? Where are the cases where the media work to protect ME patients from abuse and...

Sure! Have added a link now :-)

I saw on Twitter that this research project applied for an exemption of public announcement of the study and its protocol, because the researchers expected criticism from patients. The request was approved. This was information gained via FOI requests, but I can't remember who shared it on Twitter.

There was a good thread from Gunhild Alvik Nyborg, MD on twitter based on the interview with the Norwegian ME Association. I hope the automatic translation does it justice: Comment @journalisten from a doctor who has indirectly gained some insight into ME after researching LC: In your 1st...

Agree. She did a great job. And I also felt that the journalist might have had a journey covering this topic and discovering more nuances. But it's quite thought provoking that it's such a rare experience for someone from the patient organisation to actually get a chance to sit down with a...

Patient advocate Nina E. Steinkopf published yesterday a summary of the article series in Journalisten with a long and shocking list of the backlash she has endured from the BPS side: - I am one of many thousands of patients who have deteriorated from dealing with the healthcare system. When I...

Article 3: An interview with the assisting general secretary of the Norwegian ME Association, Trude Schei. She provides good background information for the ME debate and says what media is writing about ME has consequences for how the patients are treated. She says it's important to do proper...

"Journalisten" is a professional journal for Norwegian journalists, covering among other work conditions for journalists. They have had a series with articles about covering ME. Article 1: It started with an interview with the journalist Amanda Schei who wrote some articles on ME (with a BPS...

Quote: Michael Alenyikov was the first person I knew with ME, or what was then being called CFIDS—chronic fatigue immune disorder syndrome. We met in the mid-1980s in NY—we were younger then!—and we both moved to San Francisco in the 1990s. (...) Michael and I spoke recently about his falling...

Trial by Error by David Tuller: Claim that CBT is Safe Is "Misleading," Says Dutch Ad Group Quote: In a recent decision, the Advertising Code Foundation in the Netherlands has criticized as “misleading” a statement on the website of the Knowledge Center for Chronic Fatigue (NKCV) touting its...

CIDRAP has written an article about the study: Study finds 27% rate of long COVID in infected health workers Quote: A new case-control study of Brazilian healthcare workers(HCWs) suggests as many as 27% developed long COVID after infection, and multiple infections raised the risk. The findings...

Abstract Objective: To determine risk factors for the development of long coronavirus disease 2019 (COVID-19) in healthcare personnel (HCP). Methods: We conducted a case–control study among HCP who had confirmed symptomatic COVID-19 working in a Brazilian healthcare system between March 1...

The study is now finished, but it seems to be difficult to find a journal willing to publish it.

Review article: ME/CFS and Long COVID share similar symptoms and biological abnormalities: road map to the literature Some patients remain unwell for months after “recovering” from acute COVID-19. They develop persistent fatigue, cognitive problems, headaches, disrupted sleep, myalgias and...

A doctor from the Norwegian Institute for Public Health (FHI) recently said in a podcast that the institute is sceptical to this Nature review because it lacks a description of the methodology of how one has arrived to the results in the studies described. He said it's difficult to understand...

RNZ Long Covid and ME/CFs are the same illness, researcher says quote: Long Covid and ME/CFS (formerly known as Chronic Fatigue Syndrome) are effectively the same illness, according to a University of Otago researcher. Emeritus Professor Warren Tate leads a team at the University of Otago's...

Now in English translation: Fraudulent research on vulnerable patients quote: In a Norwegian ME study, the researchers failed to inform that one of the researchers had a strong financial conflict of interest. The study participants were not informed that they were being treated by students...

I've heard some experts claim long term sequela post covid is cumulative, others, including Dr. Eric Topol, saying the risk reduces with more infections. Could both be true? Are there any studies on this broken down into possible sub groups with higher or lower chances for developing chronic...