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only vaguely. it will be interesting to see if they'll adjust anything. I'm not holding my breath. When it comes to @Jonathan Edwards 's question, there are two articles so far in Denmark about the NICE guideline. Haven't seen anything yet from Sweden or Denmark. One of the Danish articles is...

The New York Times Another Struggle for Long Covid Patients: Disability Benefits I have a temporary subscription to NYT so the article is open for me, but I don't know whether it is for everyone. If it's not, and you want to read it, just send me a PM and I'll copy/paste it to you. Quote: Long...

I am so sorry to read what St. Olavs hospital put you through, @rainy :broken_heart: I completely understand why you don't trust them to be able to make a proper plan of care for ME patients. I'm worried as well about this. Once again there's been a rather positive initiative from politicians...

I assume that is the standardised plan of care which has been promised for several years to be developed for ME patients. But they've expanded it to be a plan for fatigue-conditions in general, so I fear it will end up with a biopsychosocial approach and be more suited for other conditions than ME.

Moved post That was a really nice podcast. Very interesting to hear about dr. Putrino's work. Here's a transcription of what is said between 26-33 minutes into the podcast (hope I got most of it right): Amy Proal Overall, I can understand how when a clinician first sees a patient like this...

Moved post

Emilie Brandshaug has received a reply from the Minister of Health Veien ut av mørke rom google translation: The way out of dark rooms Quote: Dear Emilie, I understand very well that you are in despair. After many years with severe ME disease, you experience not getting the health care you...

Quote from paper: The pattern of PACS symptoms resembles other post-viral syndromes, including dysautonomia25, postural orthostatic tachycardia syndrome26 and myalgic encephalomyelitis 27. It is unsurprising that physical exertion was the most common cause of symptom exacerbation, as this is a...

American Journal of Physical Medicine & Rehabilitation Post-acute COVID-19 syndrome negatively impacts physical function, cognitive function, health-related quality of life and participation - by Tabacof, Putrino et al Abstract Objective This report describes persistent symptoms associated...

Medical Express Study finds association between long COVID symptoms and altered oral microbiome quotes: Study co-author Dr. Bradley, assistant professor of emergency medicine, explained that it's not clear what the differences seen in the microbiome of long COVID patients reflect. "We believe...

Copied post Medical Express Study finds association between long COVID symptoms and altered oral microbiome quotes: Study co-author Dr. Bradley, assistant professor of emergency medicine, explained that it's not clear what the differences seen in the microbiome of long COVID patients reflect...

The Danish Public Broadcaster has an article about the study today dr.dk: Mystiske symptomer efter HPV-vaccine kan skyldes almindelige infektioner google translation: Mysterious symptoms after HPV vaccine may be due to common infections quote: The researchers can see that if the women had an...

Wyller has received funds to study long term effects after corona infection in adolescents. The money comes from a foundation called Dam which allows researchers to apply for funding through user/patient organisations. The user organisation for this project is Recovery Norge. This is the...

A very well written opinion piece for the Norwegian public broadcaster by a young, severe ME sufferer. I hope the google translation is ok, because this is well worth a read. We have a new government and a new Minister of Health which is the 6th Minister of Health while Emilie has been ill. She...

This is what is said in the video at 34.40. Too bad he hasn't familiarised himself better with ME before talking about it. - I also, I've had some Long Covid symptoms. I had the illness in June. And I think to dismiss this as psychological or chronic fatigue syndrome...it's similar, but there...

New interview by Vincent Racaniello with David Tuller! - David Tuller returns to TWiV to revisit his work to expose the methodological and ethical problems with the PACE trial, and the post-acute sequelae to SARS-CoV-2 infection, also known as long COVID.

Article from Medscape about the study Half of COVID Survivors Report Effects Beyond 6 Months: Review quote: Putrino said his team primarily sees patients who have "invisible" but debilitating symptoms after COVID-19 despite the fact that the results of testing of organs are normal. "We've been...

Great article in Bloomberg Law: Long Covid Doubles Burden of Mystery Illness Few Doctors Treat Quotes: “There’s still a lot of health-care providers that don’t understand ME/CFS and patients face a lot of stigma because the illness is very much biologic, very much real, but most of the routine...

newsGP WHO officially recognises long COVID quote: Dr Anna Brooks, a cellular immunologist and senior research fellow at the Maurice Wilkins Centre at the University of Auckland, said she hopes the clinical case definition will see more patients receive the care they need. She said it has...

The study was published back in June, but today there was an article about it from a Norwegian news site about research. Forskning.no: Folk med fibromyalgi føler ofte de ikke blir trodd, ifølge norsk forsker google translation: People with fibromyalgia often feel they are not believed...