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  1. Kalliope

    Long Covid in the media and social media 2023

    In the latest episode of the podcast Osterholm Update: Covid-19, Dr. Michael Osterholm says he has developed Long Covid after his recent, and first, round with Covid-19. He had been vaccinated six times I think, and also took Paxlovid when he realised he had been infected. It's hasn't been...
  2. Kalliope

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    The study is mentioned by Dr. Griffin in the latest clinical update from TWiV. He seemed persuaded by it. At 17.55:
  3. Kalliope

    Long Covid in the media and social media 2023

    No, not really. for some reason I have access to the full article. Here are some more quotes: “It is a remarkable drug,” said David Kaufman, a physician and founder of the Center for Complex Diseases in Mountain View, California, who has been prescribing LDN to patients since the 80’s, when it...
  4. Kalliope

    Instagram profile: Illustrating M.E.

    Another great illustration by Kornelia Paulsen.
  5. Kalliope

    Long Covid in the media and social media 2023

    National Geographic An overdose drug shows promise for long COVID patients quote: For decades, low-dose naltrexone, or LDN, has been used to treat a number of chronic conditions, including autoimmune disorders such as multiple sclerosis and Crohn’s disease, post-infectious conditions such as...
  6. Kalliope

    Knowledge center on ME at Akureyri, Iceland

    I heard about that. I think it was both that they are progressive in genetic research and also is such a small country that it's possible for them to have mapped the entire population? Agree it sounded strange to partner with Norway, but I was afraid someone had been "inspired" by our knowledge...
  7. Kalliope

    Knowledge center on ME at Akureyri, Iceland

    oh, I did not spot that. Yes, if only!
  8. Kalliope

    Long Covid in the media and social media 2023

    oh, that's strange.. yes, seems it might have been deleted. I think it was WHO Europe who had shared a link about Long Covid and gaming, that gaming universes had made a "long Covid" mode to increase awareness. @rvallee knows more about it and shared both a tweet with working link as well as...
  9. Kalliope

    Knowledge center on ME at Akureyri, Iceland

    oh, good news! according to a post in a Facebook group it's likely that Google translate did a mistake and confused Northern Icelandic health authorities for the Norwegian Health Authority, so Norway has no part in the development of this knowledge center :)
  10. Kalliope

    Knowledge center on ME at Akureyri, Iceland

    Spotted this via Invest in ME on Facebook. Yesterday it was announced that the Hospital in Akureyri, in cooperation with the Norwegian Health Authority will establish a knowledge center on ME. Akureyri was part of a large outbreak of ME/CFS in the 1940's. (For a time ME/CFS was called the...
  11. Kalliope

    Long Covid in the media and social media 2023

    Could be interesting. Launches tomorrow:
  12. Kalliope

    News from Scandinavia

    20 year old Eline Leer-Salvesen is suffering from severe ME and has written an opinion piece in the newspaper Aftenposten. She did that by recording speak with her mother transcribing, and then Eline edited. She writes about her life and what she is missing out on, but also that being sick has...
  13. Kalliope

    News from Scandinavia

    24 year old Maria is suffering from severe ME. For four years she was not able to take a shower or see her siblings. Now she is posting TikTok videos about her life. A health researcher says social media can be useful when informing about health and the general secretary of the Norwegian ME...
  14. Kalliope

    News from Scandinavia

    25 year old Aurora is suffering from severe ME. She is placed in a health institution in Oslo where she is deteriorating and not receiving proper care. She has been kept there against her will for 15 months. Another young severe ME sufferer, Emilie Brandshaug has written an excellent opinion...
  15. Kalliope

    Long Covid in the media and social media 2023

    Medscape: Clinical Trials: Top Priority for Long COVID by Hannah Davis quote: This article aims to share key considerations and best practices that are essential to the success of these trials. These recommendations recognize that roughly half of long COVID patients have new-onset myalgic...
  16. Kalliope

    Prevalence of long COVID complaints in persons with and without COVID-19, Magnusson, Flottorp et al, 2023

    This is a paper from the Norwegian Institute for Public Health who has downplayed Long Covid since day one and also argued for a "let it rip" approach to the pandemic.
  17. Kalliope

    Prevalence of long COVID complaints in persons with and without COVID-19, Magnusson, Flottorp et al, 2023

    ABSTRACT We studied the prevalence and patterns of typical long COVID complaints in ~ 2.3 million individuals aged 18–70 years with and without confirmed COVID-19 in a Nation-wide population-based prospective cohort study in Norway. Our main outcome measures were the period prevalence of...
  18. Kalliope

    Long Covid in the media and social media 2023

    I'm listening to the podcast now. Avindra Nath is very interesting as always, not so sure about the podcaster who is also a doctor. The podcaster says he works a lot with chronic fatigue and says he has been cooperating with Bruce Patterson (from IncellDx which claimed to have a cure for long...
  19. Kalliope

    Long Covid in the media and social media 2023

    Haven't heard it myself yet, but saw on Twitter that Avindra Nath has talked about Covid-19 and brain fog in a podcast Back in 2020 they had an episode on ME which doesn't seem good, but haven't given it a listen: "Chronic Fatigue Syndrome: The Disease No Doctor Wants to See". Episode...
  20. Kalliope

    Professor Akiko Iwasaki and the Yale School of Medicine research on Long Covid and post infection syndromes

    Such great news, and nice to see ME mentioned too: Akiko Iwasaki, Ph.D. and a professor at Yale University, will receive this year’s Else Kröner Fresenius Prize for Medical Research on June 5th, 2023 at the Palmengarten in Frankfurt, Germany. The prize is endowed with 2.5 million euros, and...
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