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The Norwegian public broadcaster NRK writes about Iselin who suffers from severe ME and receives help by an assistant who makes her food and clean her place. They had made plans for which days the assistant should come during the Easter and had gotten approval for this. But suddenly the...

Medscape Doctor's Checklist for Treating Long COVID Patients Mentions among other PEM, dysautonomia and exercise intolerance. Quote: PEM is the worsening of symptoms after physical or mental exertion. This usually occurs a day or two after the activity, but it can last for days, and sometimes...

First time I've noticed fibromyalgia mentioned as a risk factor for substantial sick leave after Covid: CIDRAP Danish study finds sharp rise in extended sick leave after COVID infection quotes: As part of an effort to better flesh out the burden of long COVID, Danish researchers today...

Thank you @Midnattsol . This was interesting. I haven't thought of that before, sick leave for pupils and employees are registered, but I guess illness among students aren't really registered anywhere?

They say it's not related to work, but the article mentions both Covid and Long Covid as some of the reasons for sick leave, and I wonder how many got infected at work. I assume no University has done anything to reduce infection among staff nor students. Also interesting that more women than...

One of the authors has written some clarifications on Twitter:

Here is a summary with key points by the authors. My bold: Key Points Question What are the prevalence and associated risk factors of post–COVID-19 condition (PCC) in young people after mild acute infection? Findings This cohort study included 382 SARS-CoV-2–positive individuals and a...

Prevalence and Characteristics Associated With Post-COVID-19 Condition Among Non-hospitalized Adolescents and Young Adults Abstract Importance The prevalence and baseline risk factors of post–COVID-19 condition (PCC) remain unresolved among the large number of young people who experienced mild...

Yes, I've seen that too, but never really further specified with descriptions and diagnoses. Dr. Peter Rowe mentioned "pelvic vein incompetence" as common in his ME-patients, discussed in this thread. I wonder if he linked it to dysautonomia/POTS, but not sure.

I don't think this article has been shared before? It's from March 19th and includes interviews with Dr. Lucinda Bateman, Professor Alain Moreau, Professor Peter Rowe, Sabrina Poirier, and Professor Simon Décary. It's Canadian and seems very well researched...

Patient advocate Nina E. Steinkopf has collected more details about the seminar, who participated and their network. Steinkopf: Chief physician for the Norwegian Labour and Welfare Administration Marit Hermansen attended a secret ME seminar quote: This is a network that fights for one...

Tweets from Dakota_150: To the #pwME community, that has implications for #pwLC & beyond. This is the latest reply from @NIH on the ME/CFS Intramural Study led by Dr. Nath: 3/24/23: "They plan to submit the paper for review within the next month. There have been many people who needed to review...

Mine has been low several times. Once it was 2 or 3. I don't notice when it's under the limit due to ME, so have to check regularly and also take supplements. Have any of you had too high levels?

Saw this tweet from Dakota about a study finding a reduction of number of steps taken compared with before the pandemic among Americans with FitBits. I don't think Long Covid is mentioned as a possible explanation, but here's the tweet and link to study in case someone is interested JAMA Daily...

So good when outsiders understand what's going on! Helmfrid has a short summary in English of the opinion piece in this tweet:

Nina E. Steinkopf has collected numbers on how many Norwegian ME patients who actually appear to have benefitted from Lightning Process (Spoiler: not a very impressive amount..) Lightning Process as treatment for ME - what are the figures?

This great article about the study has now been translated to English and published at ScienceNorway Many ME/CFS patients are severely ill and receive inadequate support quote: The survey results paint a rather bleak picture. Many of the most seriously ill patients had developed ME/CFS before...

In the latest episode where Dr. Griffin provides clinical updates at TWiV, he gets a question concerning Physics girl and says he had heard about how sick she has become. The question he gets is if it's really possible to become so sick from ME/CFS that it's life threatening. Dr. Griffin...

I don't think this has been shared yet? But this was an interesting conversation between Jamie Seltzer, Director of Science and Medical Outreach at #MEAction and David tuller. From the YouTube description: We spoke a couple of weeks ago about her background, her work, the debate around...