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  1. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    ooh, Retraction Watch is sharing Nina E. Steinkopf's article. Great that they're following this! https://mailchi.mp/retractionwatch/the-rw-daily-david-agus-oncologist-plagiarism-book-misinformation-frontiers-deception-detection?e=%5BUNIQID%5D
  2. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Nina E. Steinkopf has commented the debate on Facebook. This is a google translation of the comment:
  3. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Nina E. Steinkopf: A sad day for science quote: Despite evidence of a financial conflict of interest; after nearly two years the journal Frontiers has decided to believe in the authors and publish a worthless corrigendum. What happened to their high standard of research integrity...
  4. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    There were two articles about breast cancer and psychological support/patient's attitude in forskning.no today. In the second article the Norwegian Cancer Association seems to sum it up pretty well, in my opinion: (google translated quote) According to their surveys and feedback, the patients...
  5. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    oh dear oh dear.. quote from Reme from the article: - We have a hypothesis that what the patient brings to the operation determines the prognosis. If you have a lot of anxiety and stress and face a difficult situation in life without much social support, this can affect the outcome of the...
  6. Kalliope

    News from Scandinavia

    :laugh:
  7. Kalliope

    News from Scandinavia

    Thank you for the summary! The movie sounds exactly as I feared just from the Norwegian title, Sick girl. Yes, things are pretty bad here. Yesterday an Official Norwegian Report was published on women's health. It documents that many women are not taken seriously in the health care system, but...
  8. Kalliope

    Long Covid in the media and social media 2023

    New Scientist present the article in their latest podcast. Nothing new, but on the high prevalence of long Covid and the increased attention to ME and fibromyalgia and how infections can trigger chronic disease. Mentions Prusty briefly. https://www.newscientist.com/podcasts/
  9. Kalliope

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    BBC Exeter ME patient's hospital care changed after campaign quote: The change by the RDE came after her family raised concerns she could die from starvation if her treatment was not changed. Ms Barrett's father Mark told BBC News: "We are so pleased they have listened and we hope it is not...
  10. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That's wonderful, @Midnattsol ! I'm too brain fogged to write a summary, but am sure it's of interest to the forum. Thank you!
  11. Kalliope

    Long Covid in the media and social media 2023

    Medpage today Evaluating and Treating Children With Long COVID Quotes (my bold): Given the overlap between post-COVID condition symptoms and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), the collaborative has suggested screening for ME/CFS. Often the "pattern of fatigue" in...
  12. Kalliope

    Long Covid in the media and social media 2023

    that was a heartbreaking article. ME is mentioned briefly: But if the challenges people living with other chronic conditions — like myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia, and chronic lyme disease — have faced attempting to get workplace accommodations are any...
  13. Kalliope

    Severe and Very Severe Myalgic Encephalopathy/Chronic Fatigue Syndrome ME/CFS in Norway: Symptom Burden and Access to Care 2023 Sommerfelt et al

    A good article today about this paper from a news site on research. The article has comments from the leader of the National Competence center for CFS/ME (known for their biopsychosocial approach) who says ME patients are right in that they are not being taken seriously, and that they are met...
  14. Kalliope

    Long Covid in the media and social media 2023

    BMJ Helen Salisbury: Unfit fit note proposals quotes: Last week, we heard that GPs are to be encouraged to sign fewer fit notes as this will boost Britain’s flagging economy by getting people back to work.1 This particular kite has, according to the Telegraph, been flown jointly by the...
  15. Kalliope

    Long Covid in the media and social media 2023

    Fiona Lowenstein writes in Wired: It's Fine to Never Meet IRL quotes: As high-risk individuals are marginalised from a society eager to ignore pandemic harms, tech companies must do more to expand accessible virtual spaces. ... When the pandemic first began, many events and offerings became...
  16. Kalliope

    Long Covid in the media and social media 2023

    The Conversation We got some key things wrong about long COVID. Here are 5 things we've learned quote: In the past we had not devoted sufficient resources to treat post-infectious or immune syndromes such as myalgic encephalitis or chronic fatigue syndrome (ME/CFS). These syndromes are defined...
  17. Kalliope

    Long Covid in the media and social media 2023

    Trial By Error by David Tuller Correctives from Putrino & Iwasaki (and Others) to the Long-Covid-Is-Psychosomatic Claims quote: The Iwasaki-Putrino essay pokes holes in the argument that the failure to have already unravelled all of long Covid’s pathophysiological mechanisms means that this...
  18. Kalliope

    Long Covid in the media and social media 2023

    Scientific American has an article about Long Covid which includes a section on ME: Long COVID Now Looks like a Neurological Disease, Helping Doctor to Focus Treatments Quote: Postviral syndromes have been documented for more than a century, arising after infection with viruses from HIV to...
  19. Kalliope

    Norway: Article about ME seminar with security

    In a new blog post from patient advocate Nina E. Steinkopf it's revealed that Research Director from the Norwegian Institute for Public Health, Signe Flottorp participated, at the seminar. She has since deleted e-mail correspondence with the organiser. Steinkopf also shares the invitation to...
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