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  1. AliceLily

    Janet Dafoe - The Whitney Plea

    Excuse my basic comment, sore eyes and head today. I personally think the gesture would be laughed at because it does have a strangeness about it. But would just like to add that I felt the love and care (as I am sure everyone else did) in Janet Dafoe as she was talking and understand. I...
  2. AliceLily

    Potential new cure found for baldness

    @Wonko @Andy H @arewenearlythereyet @Skycloud @Diluted-biscuit Thank you all for your gentle replies. I felt quite sick after posting yesterday worried I had upset anyone but you were all very kind in your responses, thanks so much. :hug:
  3. AliceLily

    Potential new cure found for baldness

    Some do suffer psychologically. I just don't think we need to have a laugh at them as people with ME. I'm glad for you that it doesn't bother you @Wonko
  4. AliceLily

    Potential new cure found for baldness

    I hope men/women with baldness are not reading this thread. Let's not make fun of people with baldness just because have gotten more funding. They must suffer a lot of anguish when losing their hair. Its so easy to laugh and not realise the psychological harm that can be done. We are not all...
  5. AliceLily

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Passed three quarters of the way now. Made my second out of three donations today. Thanks.
  6. AliceLily

    Insights into vaginal bacterial communities and metabolic profiles of chlamydia trachomatis infection: Positioning between eubiosis and dysbiosis

    This is where I believe my ME began. I caught a vaginal infection when young (chlamydia trachomatis) I was never the same afterwards. This infection changed the vaginal microbiome and never returned to normal. I suspect the antibiotic pessary could have caused the changed microbiome (?). I...
  7. AliceLily

    Cimetidine: An immune modulator that actually seems to be working for me

    @Hutan Do you mean that we can purchase it online. I checked whether I could get it over the counter last year and was told to order it online from Australia. I didn't follow through though. I don't have raised CRP though. Whether that makes a difference for trying it I don't know. I need to...
  8. AliceLily

    Leonard Jason wants ME/CFS patients to do a PEM survey

    I'm not up to doing the questionnaire yet but will when I have rested more in the weekend. Is there a time frame for doing it or cut off date?
  9. AliceLily

    Leonard Jason wants ME/CFS patients to do a PEM survey

    It could be a big block or a small block of houses. If a block is as large as 20 houses long before a road, I would half that amount and call 10 houses 1 block.
  10. AliceLily

    David Tuller's new crowdfunding campaign (April 1, 2018)

    A few days late with this but I have donated today and I will be able to do it 2 more times this month. Thanks.
  11. AliceLily

    Free nasal microbiome test/study at uBiome

    I'm glad I did mine test when my sinuses were bad. Just hope they were able to capture it from the testing areas further away from the nasopharynx. It sounds like we could be waiting another 3 months. Hope we get it this year! Oh, well, at least it shouldn't be as long as waiting for ME research.
  12. AliceLily

    David Tuller's new crowdfunding campaign (April 1, 2018)

    I haven't donated yet, but will in the next few days. Depending on how long donations are open for I will try and donate each fortnight a small amount.
  13. AliceLily

    ME/CFS Alert - Interview with Michael VanElzakker

    I don't know whether there is an established thread for this but with my brain fog I forget all the researchers/research studies to donate to. I wish there were a thread I could go to and see a list. It would be good to refer to when deciding who to donate to next.
  14. AliceLily

    ME/CFS Alert - Interview with Michael VanElzakker

    I've never had them. Do a poll.
  15. AliceLily

    Free nasal microbiome test/study at uBiome

    I haven't heard anything yet. I've been waiting to hear when you receive yours because mine returned a month after yours.
  16. AliceLily

    Why I want to lie down in public - BBC

    I often wish when out that there were shops that offered a bed to lay down on. Even if it were like a hospital ward with curtains to pull around.
  17. AliceLily

    Foot pain

    He was cute!
  18. AliceLily

    Foot pain

    I haven't had a massage in years. My mother had a guy come to the house to give her a back massage every fortnight for awhile. She was giving herself a treat. One time he was here I came out from lying down in my room and while I was chatting to him about massage he came up and gave my back a...
  19. AliceLily

    Foot pain

    Thanks @duncan I'm in a tricky situation now regarding antibiotics, which I don't like to think about because it scares me. I have become intolerant to them since menopause. It feels to me like they are now over sterilizing me in a bad way. I never had any problems with antibiotics before this...
  20. AliceLily

    Foot pain

    @duncan I get pain mainly after sitting or laying down for a while and it eases up as I start to walk and warm the feet up I guess. Although there is some tenderness or sore points if walking on a hard surface without good cushioning support. If you don't mind, what did you end up taking that...
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