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Hi @Jo Best Thanks for mentioning. I am thinking of changing my doctor this year. He has been very good to me but I think he tends to see a lot of my symptoms as being caused by ME and I think other illnesses are being missed. I'm going to try and see if I can get a new doctor to send me to a...

@MErmaid I'd be interested in finding out how much lactic acid build up I have. I only need to go for a short run to catch a bus to make my legs feel thick and heavy. Someone gifted me a bike years ago and I thought it would be good to use for going down to the local dairy instead of walking but...

I have to turn the volume down quite a bit while watching cab train rides on youtube because of the loudness of the train horn. I wonder what the state of hearing is like for train engineers on retirement.

I voted no because my ears are mostly fine, I think. The only thing I do notice but only every now and then is the sudden sound of what I would liken to the sound the telephone makes when you lift up the handset and put it to your ear. It's that sound that the phone makes before you dial...

Does anyone else get foot pain? I think my foot pain could be enthesitis. I get streaky tight pain across the middle of the sole of my foot (getting this one while laying down now). I also am experiencing tender soreness, tightness when I get up to walk after sitting or laying down. I can hardly...

I might be a bit off topic here, excuse please. A few years ago when my mother got very sick after a change of tablets she ended up in hospital with severe withdrawal symptoms. While visiting her I would get up every now and then and go for a walk around the ward and read information about...

I was talking to my mother about this a few weeks ago. I would get one if I had my own home with a second story. I would use it and so would my elderly mother. All the best with it all.

@adreno Sorry you have joined our club. Hope it is just temporary and you pick back up eventually. I'm not keen on sprays, due to a bad experience with one over 20 years ago. It caused a rebound which was so much worse than the original. The spray was for drying things out while in the first...

Since getting ME I sleep far less and have never been able to make it up. In the early years of severe I was sleeping 2-3-4 hours sleep (it was bad) and many nights I didn't sleep at all. In my moderate years I began to get up to 5-6 hours. I think it was around 2010 when I began to have some 7...

@Lilpink I missed something here. A gradual acute would be a staged onset. So you can say both. You had a gradual acute onset or a staged onset. I'm a bit fogged but I think this is how I would take it.

. It sounds like you had an acute point which was significant at the end of the six months, so I would say you were a gradual acute onset. It does sound like you may have had some kind of issue leading to ME before this though.

@Daisybell I'm getting the same thing. I think it is this tropical weather we are getting? Constantly sweating with the heat. On and on it goes, I can't remember a summer like it. Not complaining, I would rather like this than bitter cold winter.

I had an unusual feeling of weakness in my legs in my severe years. It was so unlike anything I had ever experienced that I was concerned that it was MS. It felt jelly-like. I think it was also connected to the jelly-like feeling I had in my spine because I couldn't hold myself up in a chair...

I see in my emails today that my test kit arrived at uBiome on Friday. So, 35 days return post. I was beginning to think it might have got lost. It didn't help that I had lost the tracking number.

I think ME research might shed some light on this in the future - in some subgroups, maybe.

I noticed something last year that settled my chronic bout of stuff in the nasopharynx area and this happened after I had to go to A&E with severe headache and vomiting. I had never been that sick so quickly with headache before. Anyway, I realized afterwards that my nasopharynx area had...

I stopped taking fish oils a couple of years ago when I got very sick. I felt at the time they were not as beneficial as I thought (for me). I think d ribose was a problem as well even though it helped with lessening pain in the hands within a hour of taking (which was astonishing to me) and...

I think my uBiome kit is returning by snail mail. I haven't heard that it has arrived yet.

@perchance dreamer . Thanks. I had lots of problems with retention in my sinuses in my severe years. I had to go on antibiotics for six months straight because my sinuses were exhausted and pretty much non functioning. I also have to be careful how I turn my head and how I extend it. I made...

@TigerLilea You reminded me of my experience with the neti pot. I bought a neti pot in my severe years for my chronic sinusitis. I had to stop using it. I felt so much worse, increased dizziness, heavy head. It felt like the walls of my sinus held on to some of the water making me feel even...