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@Robert 1973 Beautiful. Love this song.

. I agree with this too. For me, I always have ME symptoms but PEM flares everything up even worse and takes time and rest to ease again and that time frame can be different each time. I wish I could have been tested in my severe years because PEM was so extreme in those years and those hits...

I thought this same thing last year when a lot of people got sick from contaminated water supply in one part of the country. How many would not recover properly and go on to get ME in the future.

I will mention it to them in email if I can't find it either.

@TigerLilea Same here. I couldn't see anywhere to mention that I had ME/CFS. I came across another section after that though, with heaps of questions in each category. From memory there looked to be about 10 or more categories with many questions in each. I only completed one and a half of, so...

Thanks @TigerLilea :thumbsup: :hug:

@Allele I thought the same with the first lot of questions. I then saw there was another section after that "History questionare" or something similar. So I clicked on that. Oh boy, there is a ton of questions to be answered there. I filled one section and started another but had to leave it...

@TigerLilea So I just pay postage at my end at the post office and post? For some reason I thought I had to pay 'ubiome' again for return. Anyway, I have emailed them again for clarity on return postage. I have really found the site hard to follow - probably just me. They are very helpful by...

It's not in the spam folder. I have tried again to get a new password but nothing is coming to me via email and they do a pop up message that appears for a few seconds and disappears before you have time to read it all. I think I will just have to forget about posting this off today and go...

Thanks @Inara I think what has thrown me is that I have lost the password that I used. I bet I wrote it on a piece of paper then got distracted and have lost it. I did try their option "forgot your password"?. But something popped up so quickly I couldn't read it before it was gone. So brain...

Feeling frustrated. I can't follow the instructions to activate the kit ( I did the swabs this morning and need to send off today). I don't know if I have to pay more money to send back either. Can anyone walk me through 1. How to activate kit? I can't see anything on the page where to...

Yeah, I'm glad the timing has been perfect for me as mine are bad at the moment and exactly the sinus problem infection (whatever) I have had all the way through (all the years of my ME) so it will be interesting to see the makeup of it. All the back of my nasopharyx area feels sore and can...

They must have good preservatives in the solutions. I'm thinking I might do my swabs first thing in the morning, within a half hour of waking. Sometime this week. I haven't done it yet. What time of day is everyone else on this thread doing their swabs?

I noticed the postal address on the packet read San Francisco. I thought it was coming from somewhere much further inland.

12 days. Pretty good. Received it this afternoon.

I had a lot of nausea and different types of awful stomach in my severe years. I don't get these types now, just nausea mainly from headache. When my ME is very severe and I am bedridden, weak and cannot eat, I get diarrhea. Would love to know what changes cause me to go through these episodes.

I wouldn't mind doing this three years in a row to see if I am getting the same infection all the time or whatever it is that feels like infection. Remember to write down that you have ME/CFS for their data. I don't know if they ask whether you have an illness or not.

Wonder how long it will take to get to NZ. Can you guys let us know when you receive your test kit?

Could do.

Thanks for putting this up @adreno I've just ordered.