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  1. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Is there still room for any influence? How? Hope this is not too much pressure. ETA: I think there are 2 more posts to be allocated???
  2. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    @Gecko . Just wondering if there is another source we should know of? Or just keeping a useful eye open? Thanks.
  3. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I have been unable to find a full list of gdg members on the AfME website. @Andy, you say “ additional members being found out”. So there was no announcement? So, who let it slip and why?
  4. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    Clare Gerada and Sir Simon Wessely “Folie à Deux”
  5. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    @Trish I am sorry that you have had to be on the receiving end of Clare Gerada’s vileness. You have represented our case so well. Thank you.
  6. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    @Cinders66 I didn’t know Holgate signed a letter of support for Wessely in the Maddox prize award. Interesting to know these things. And the more support someone has given someone, say Wessely, then the less likely they are to move to the group opposing, because their judgement is shown to be...
  7. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    How could we deal better with the PR issue? The BPSers have the benefit of long time control of the narrative, they have people of influence ( or at least important sounding titles) that they can wheel out; they have a lot of doctors on side and doctors have a reputation of being “ a good...
  8. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    That tweet by Clare Gerada is priceless.
  9. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    Can someone who tweets reply to Clare Gerada’s tweet at 9.14 this morning. ETA: you got there first @Sasha .
  10. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    Kate Kelland who wrote the Reuters article has a history of bias, and links with the SMC were pointed out a year ago. https://usrtk.org/our-investigations/acc_loves_katekelland/ It’s quite a long article to read before the SMC emerges into the story. I always thought Reuters was a model of...
  11. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    Blakemore has been involved before in supporting Wessely in his claims against patients. From 2011 in the Times https://www.meassociation.org.uk/2011/08/disease-of-the-braib-not-the-mind-has-no-stigma-professor-colin-blakemore-in-the-times-2-august-2011/ Beneath the words about understanding...
  12. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    She was also Chair of the RCGP ( Royal College of General Practitioners) so they are “a power couple.”
  13. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    I too was mistaken and thought it was CBT/ GET, and @dave30th tweet referred to them both. I ‘ll need to read the Reuters thing again. It was awful. Who is Kate Kelland?
  14. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    I wonder who raised the formal complaint with Tovey, as editor in chief, that he felt had to be listened to. ETA: and what were the specific questions posed that the editors judged were so important? See Reuters link. ETA: “In an emailed response to questions from Reuters, Tovey said: “We...
  15. Binkie4

    Stanford Community Symposium 2018: Jarred Younger

    Thanks @Simon M, and for the clarity of your writing which makes a big difference for a non scientist.
  16. Binkie4

    UK CMRC Conference 2018 - David Tuller

    I really didn’t get “looking over his shoulder” for the last 5 years. Who was he looking for or at? The BPS lot. That explains why the CMRC has achieved nothing.
  17. Binkie4

    Forward-ME Group Minutes – 17th July 2018

    @chrisb Nor do I. I just have a very uncomfortable feeling. I have admired the Countess of Mar for several years but it doesn’t feel quite the same and not in a good way. Perhaps better expressed below. I agree with the above.
  18. Binkie4

    Forward-ME Group Minutes – 17th July 2018

    Exactly. You are quick off the mark @Andy. I have been checking for these regularly. I don’t understand why it took so long to produce them. I also notice that there were a lot of ‘apologies’. I wonder how much notice was given. The date of the previous meeting was also inaccurate. It was 1st...
  19. Binkie4

    UK CMRC 2018 Conference Dr Nina Muirhead

    @Cinders66 His job was advertised as a 12 month short term appointment. It sounded very BPS focused. I don’t know who was appointed.
  20. Binkie4

    UK CMRC 2018 Conference Dr Nina Muirhead

    Dr Bansal retired from NHS practice at the end of Aug, and is currently away from work sick. He is intending to return and continue seeing private patients, and do research. He is very understanding and empathetic. I had NHS B12 injections prescribed by him in about 2010 but felt no benefit...
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