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Interestingly, a mum on one of the parents' forums asked the physio on the first visit if she could use a heart monitor for a week prior to looking at exercise programme. Her daughter is mild/ moderate, but had a horrible paralysis episode after HPV vaccination. This was provided. A week later...

Picture a child. Frustrated at missing out on so much. Eager to catch up with peers. This is a potential recipe for disaster. We don' t have specialists: paediatrician handed out Bath proformas and emphasised start small and build up.As did GP. Unfortunately the websites i found on the back of...

What is her ferritin sitting at?

Ticky box

Official statements on Camelford seem particularly ill informed. Seemingly residents were told to boil water before use - concentrating the solution ....

Wrong interpretation, sorry. Misquote.

Thanks @Valentijn . I should hae known it would be like that

Yes it was interesting. I had particular empathy when tests were normal and the family were being accused of making it up... strangely familiar territory. The dopamine connection was interesting too - it seems to pop up in many mechanisms

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In the letters Simon Wessley wrote re GET, I'm sure there is a statement where he admits that the treatment may harm some ( but then did not do anything to mitigate this risk) @Valentijn , @Esther12 may be able to point you in the right direction. Hopefully my memory is not completely shot!

In trying to discover why my daughter felt much better on antibiotics to treat H Pylori I came across this paper- many of the symptoms are similar, and response to metronidazole, which was used as part of the treatment protocol seems to be indicative of potential D Lactic acidosis link to paper...

And it has caused harm to people who were not informed of risks

The MUS agenda is worrying. It' s a rebadging and extension of the gameplan used for PACE to many conditions. Effectively it' s a recategorisation by the back door of many chronic illnesses. It' s been thought out well in advance and introduced in increments.

I think though that the letters to GMC are valid. Some of the experiences with children are the stuff of kafkaesque novels playing out here in C21st. Whatever your thoughts on Dr Myhill she has been right about GET from the start ( has protested against it) and, perhaps more pertinently, has...

Given the short time slot, i think the following should be targeted Flaws in PACE and impact on biomedical research ( uk was once a world leader in this field) Harm caused by recommended treatments with no risk of harm highlighted to patients. Helsinki aspect. Psych slant for insurance and...

I hope Carol is up for it. She came over as really nervous during the parliamentary committee exchanges. Time to get in touch with MPs...

@Valentijn this is not the first paper to adopt this " definition". There may be a relabelling and repositioning going on. I struggle as to how these kind of papers get published. Perhaps we need an analogy with another chronic illness ( replace CDF with something else) to illustrate the...

No doctors we know who could attend ? Given the wealth of systematic tweaking that characterizes many of EC' s trials , this would be interesting - is this the norm, or an anomaly for this illness?

At what point does the emporer discover that there are no clothes?

Is there any research group in UK actually capable of both diagnosing and carrying out research on children/ adolescents with ME? Extrapolating any of this gobbledegook is dangerous. More ominous is the new category of CDF which by claiming proxy status ( which it cannot be according to...