She' s a scientist (?). The only way to deal with this is to counter narrative with facts and references.
The claim re children is untrue - Dowsett + Colby researched school attendance as indicator for ME in 1990s, ( i think) and published a study on it.
Most can be debunked in a similar...
I don' t know how recent it is. I habe a friend who is studying nutritional therapy and gets her levels tested there every year- so perhaps a couple of years
A narrow look at vit D. It underwrites around 5% of your whole genome and is integral to immune system. It would perhaps have been better to look at levels when first diagnosed .
We had to push to be taken seriously requesting this and had some very sheepish faces at the surgery when results...
He deserves thanks for this. Whilst it did not include a lot of info , and could have provided more graphic info ( a lot was not used), it opened a dialogue with the general ( radio4) audience , and added to other media coverage.
Perhaps @Nathalie Wright you could compare ME to cancer. Contrast the provision of specialists, research, funding, access to education and benefits, and media profile. People look at me askance when i gave said it would be easier if my daughter had cancer- horrendous to say but we would have a...
I expect a huge variety of cherries will be picked as biomedical science progresses. This is the aspect that should be publicly " outed" preferably in peer reviewed pieces
Given the questioning re the efficacy of CBT per se, i can envisage a lot of papers in the pipeline suggesting its use for many conditions to preserve infrastructure and staff...not due to either its appropriateness or effectiveness
I'm looking at this from a slightly different angle as I've gone backwards to look at wider picture and not just post glandular fever onset. My daughter started to noticeably have allergic reactions after chickenpox ( pre school), shingles ( pre age 10) and glandular fever( age 14) specifically...
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