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Self reported questionnaires .....

Since my daughter experienced side effects from drugs that " have no side effects" ( vit D) , and also glucocorticoids with doctors not really interested in digging deeper, i am interested in how genes and environment may affect responses. We have not done 23and me ( mainly because i don't...

I definitely did the wrong course at uni. Oh to be rewarded for churning out crap

Shocking but perhaps not unexpected Check out @MrTopple’s Tweet:

Brilliant article. Makes things easy to understand. Something like this should be on every undergraduate course .

It' s an interesting query given the association with significant hormonal changes at adolescence and pregnancy. I can' t help but think that there will be some effect, and given the idiosyncrasies of this illness there will probably be good and bad responses.

Agreed - it was due to their focus on family rights and values.

Probably US system, but always good to compare and pick up good interventions and practise

Sounds very similar to the child with mitochondrial disease a couple of years ago , who was effectively held. It was the American christian right who instigated her release.

How soon after exercise was the analysis done - 24/48/72 hours? The delay in PEM may be of importance. Were the subjects experiencing this when tbe second bloods were done? Could the unknown metabolite be the " something in the serum ?" Lots of questions

It is subtler. Severe ME is not acknowledged in children. If you fail to recover you are simply rediagnosed. This labelling is anecdotally higher in incidences where the parent is a single mother, but not exclusively.

I have not watched but i don' t think you can divorce this from the US context . This is simply a continuation of roll out and roll back on a raft of areas that determines where the social conscience sits - and by doing this the context is reframed, so that the next roll out will have a...

Where are you on this @Russell Fleming ,@Action for M.E. ,@JenB ? This is every parents' nightmare writ large. Kafka could not better play it out .

Perhaps one for Coyne ?

I have skimmed reviewers comments from the link posted by @Dolphin- notable difference between UK and Australian reviewer. Looks like the difference between someone who knows what they are talking about and someone who dosn' t / someone who is on a defined career path/ cognitive dissonance...

One for @dave30th perhaps given recent Australia trip

Daughter has dry eyes intermittently since reaction to high dose vit D post glandular fever and pre diagnosis. Eyes often feel gritty and " don' t hold tears" . We have not associated it with ME , probably because it' s not a noted symptom- perhaps worth a poll?

The question is why publish them ?

Why?

Nissai - they have a virtual academy which is impressive and works for many children with health/ social issues which precludes meaningful school attendance. This kind of education should of course be a matter of course in the 21st Century, as Belgium has done with BEDNET, but seems sadly...