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I think for me I find it hard to be interested in his argument because it’s the same old wine in not even new bottles. Then I just look at him and think that his behaviour is more fascinating than what he is saying. I suppose he probably sees as an ad hominem attack or something. I’m not...

Brilliant and I’m a bit of a Who fan so immediately saw where you were going. Yes I am also an alien hunter despite not believing in them. Let me know if you want a tarot reading, the time travel makes me quite good at it!

Like what is the point of looking at “health” through a religious lens. Well maybe there doesn’t need to be one. But what is the point of looking at ME and LC through a religious and sociological lens and claiming that patient advocates have “captured” journalism and science (especially in the...

I don’t think he comes across as really knowledgeable (but I’m willing to concede that I’m not either and that could be affecting my view). Is he trying to manifest it? Hes had backlash all over X and Reddit and probably other socials. Mainly because people didn’t like his piece or what he...

There is a transcript, I’ve not read but it’s important to state that he mentions how scared he is a few times at the top. He’s scared about someone cc’ing his department head, people are starting petitions, he’s scared.

Programme description Why do people lose their minds over seed oils, raw milk, carnivore diets, and long Covid? Alan Levinovitz isn't a doctor or a health journalist — he's a religion scholar. And from that vantage point he noticed something you can't un-see: the way most of us think about...

He’s big into believing stuff, sources and fact-checking not required. Did you know he once thought he could shoot fire out of his hand, but realised he couldn’t? Hopefully he’ll pop back and you can discuss it with him.

PACE seems to be covered in these 30% and 30% and 30% quotes. In unrelated news, when I was at unit there was a big issue one year because the lecturer just gave everyone the pass mark. He was only interested in the top few students and the rest of us were at a loss (he didn’t teach us...

There’s a whole thread about the article with the petition against it, though. Apparently it’s just the r/CFS sub where any comments are banned

My email isn't my name. Therefore if I gave the committee my email they wouldn’t know my name. Anyway I’m happy with it, seems like this is the way these things often work than a unilateral S4ME committee decision, and there’s already a new process set up for in the future. Well done...

I’m just gutted it wasn’t hot scotch, I reckon if I could get a afew hot toddies in me I’d give Raygunn a run for her hoppity kangaroo money. I suppose we should be flattered? That Al chose to come here and engage, unlike those plebs over on Reddit who he didn’t bother with /s

Didn't he say she is “out of her depth” earlier on this thread. Because it seems a bit projection, like actually he was journalistically out of his depth.

post copied from the MEA news thread The PROMS autono-me Elaros app is now available to download. If you buy the paid subscription you can download reports of the data you input. The third pic is “who is this app intended for” the final bullet is “clinics and health insurance companies...

This post has been copied to the thread about the app. Please go there to discuss it. The PROMS autono-me Elaros app is now available to download. If you buy the paid subscription you can download reports of the data you input. The third pic is “who is this app intended for” the final bullet...

I thought that was why the Willing and Able thread was set up now though?

Furthermore, having only had the experience of panels making assessments of non-research things, it’s never really the case that each member has to be an expert. An example of this would be a jury in a court case. I think a panel who is looking at a proposal for funding is deciding yes or no to...

*obligatory “not a scientist” disclaimer It seems to me from what I’ve read on the thread that it’s standard practice for these panels to exist, and for them to be anonymous. Therefore the choice is either that this panel includes some anonymous members from S4ME or from somewhere else...

I think it sounds great, and really good for S4ME. Sounds like there are a lot of versions of PPI, some definitions would help. I know there is a lot of variation in roles (and influence).

For @Trish ‘s sanity and workload!

I don’t think there’s a consensus, it’s not a quid pro quo. In any case when you usually have menopause you’re getting older and that doesn’t help the ME either. I just mean in terms of looking at recovery in women over 50 it’s a part of the picture. A part you might not have for all t(e...