Science for ME
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Welcome to Science For ME
About the forum. Members can access our rules, guidance on using the forum and a section where members can introduce themselves.
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Welcome: About the Forum, Our Values
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Latest: Welcome Science For ME, Apr 20, 2024
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ME/CFS and Long Covid news
A place to discuss news about ME/CFS and Long Covid.
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ME/CFS and Long Covid news
A place to discuss news about ME/CFS and Long Covid.
- Discussions:
- 3,261
- Messages:
- 102,691
Latest: United Kingdom: Action for ME (AfME) news Kitty, Oct 15, 2024 at 11:30 PM
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ME/CFS and Long Covid research
A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
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ME/CFS and Long Covid research
A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
- Discussions:
- 4,927
- Messages:
- 58,898
Latest: A narrative review on the similarities and dissimilarities between [ME/CFS] and sickness behavior, 2013, Morris et al duncan, Oct 15, 2024 at 10:48 PM
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Other news and research
A place to post and discuss other news and research relevant to people with ME/CFS
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Other news and research
A place for other health-related news and research. 'Conditions related to ME/CFS' includes IBS, POTS, fibromyalgia, post-treatment lyme disease, Gulf War Illness. 'Other Psychosomatic Medicine' covers approaches to diseases other than ME/CFS and Long Covid based on a psychosomatic paradigm - these often refer to illness labels such as Medically Unexplained Symptoms (MUS) and functional disorders (e.g. Functional Neurological Disease).
- Discussions:
- 6,716
- Messages:
- 51,895
Latest: Unemployed could be given weight-loss jabs to get back to work, says Wes Streeting TiredSam, Oct 15, 2024 at 11:16 PM
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Resources
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- 158
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- 1,536
Latest: Care and Support Plan template free to download, Action for ME MSEsperanza, Oct 10, 2024 at 12:05 PM
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Advocacy and Fundraising
A place to discuss advocacy and fundraising related to the ME/CFS community
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Advocacy
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- 1,047
- Messages:
- 21,020
Latest: Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation) JemPD, Oct 15, 2024 at 9:07 PM
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Guidelines, reviews and disease coding
This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.
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ME/CFS related guidelines, reviews, disease coding
'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
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- 111
- Messages:
- 12,165
Latest: Coding Long COVID: Characterizing a new disease through an ICD-10 lens, 2023, Pfaff et al Kiristar, Oct 15, 2024 at 1:20 PM
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Research quality and methodology discussions
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Latest: Patient registries Ravn, Oct 11, 2024 at 7:58 AM -
Causes, Epidemiology, Criteria, Naming discussions
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Latest: The Concept of ME/CFS rvallee, Oct 15, 2024 at 11:26 PM -
Symptoms and signs discussions
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- 556
- Messages:
- 11,543
Latest: Post COVID Migraine in a Six Day Cycle Sasha, Oct 15, 2024 at 12:10 PM -
Treatment discussions
A place to discuss treatments for ME/CFS and related conditions, excluding psychosomatic treatments
- Discussions:
- 299
- Messages:
- 6,651
Latest: Aripiprazole - Abilify Yann04, Oct 13, 2024 at 1:28 PM -
Psychosomatic theories and treatments discussions
A place to discuss theories and treatments based on the assumption that ME/CFS and other illnesses are psychosomatic, caused by false illness beliefs and deconditioning. Topics include PACE trial, CBT, GET, MUS, functional diseases, Lightning Process.
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- 53
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- 2,508
Latest: BBC Radio 4 programme featuring 'Functional Neurological Disorder' (FND) DigitalDrifter, Sep 25, 2024 -
Other specific illnesses discussions
A place to discuss alternative diagnoses and possible co-morbidities
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- 270
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- 3,380
Latest: EDS, hypermobility, and the link, if any, to ME/CFS wastwater, Oct 11, 2024 at 6:19 PM -
Doctors, clinics and organisations discussions
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Latest: CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital duncan, Oct 15, 2024 at 10:13 PM -
Living with ME/CFS discussions
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- 333
- Messages:
- 6,838
Latest: UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 (including PIP consultation) rvallee, Oct 14, 2024 at 8:12 PM -
General ME/CFS discussions
For discussion topics that don't fit any of the named discussion forums.
- Discussions:
- 69
- Messages:
- 1,756
Latest: Well-known, famous people with ME/CFS (public thread) SNT Gatchaman, Oct 15, 2024 at 11:23 PM
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