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I wouldn’t like to work at that University. Are they ok with their name being dragged about in the press like this? Makes them look like a school playground. Why doesn’t brain training get better representatives? People think it’s amateur then the cheerleaders always have arguments that fall...

Well, women over 50 usually have menopause in the mix. Whether you believe that menstruation and hormones have a direct role in ME or not, the fact is you have a lot of changes every month then you don’t, unless for some reason you didn't. That’s got to factor in somewhere.

I don’t know whether this is the person (although there are a few different women to chose from) she is very active on Social Media and promoting Curable https://s4me.info/threads/curable-mind-brain-training-app-and-me-cfs-including-the-role-of-fiona-symington.37776/

I think there is a thread about her?

My point being why are we heavily persuaded to the incidental things, whilst being denied a true choice? I wonder how much the pendulum would swing if a drug was found, probably some people would still eschew it and try diet/yoga/brain training. Probably some people would still claim brain...

What strikes me is that in other illnesses there are choices for the patient.. Usually a patient can choose from medicine, psychological support, brain training, alternative treatments, traditional treatments, in combination or isolation. You can have cancer and refuse to treat it in any way...

Reminds me of the Revolutionary Communist Party. Takes me right back to my youth. They liked to debate a lot as well.

Hopefully

Is it high protein? I’m on GLP1s Is it ok to mix it with my Mediterranean diet? Can you make white chocolate mice from it? It’s typical this knowledge has been withheld from our community, we could have all been cured already!

Did brain training originate from MLMs or is it just a close relative of mindset training?

I fixed all my psychological issues and believed I could get better. Does anyone know when it kicks in? It’s been decades now.

I get the leg pain thing as PEM. I didn’t get it in my earlier years, as time went on and I got more sick it became a thing 7-10 years in. Fizzy head for me relates to migraine, which relates to period cycle. If she has endo then that’s something which can cause exertion from dealing with pain...

So do mice get PEM or no? Did they have to do a C-PET? Gutted I’m not a mouse. Very exciting though because I’m desperate to go swimming.

A few million at least

Brilliant, you got a bot reply

He is looking at this forum as was described as a “humanities voyeur”. We cannot say anything which can change his mind, nor can he say anything which will change the mind of one person here. But that is not all - he is interested in”insular communities” belief systems, group dynamics. He seems...

In medical illness forums they don’t want to get sued, I’d guess. That’s why they get moderated. But there’s whole internet out there where they can post. Apart from all the places where they’re not allowed to - now that’s a list of evidence I’d be interested in seeing. Names, dates, places...

Then add in the “remission” the sudden improvement, the almost “back to my best” that lasts a good while…and see if that’s still the case after 2 years, 5 years…

An AMA is a thread to “ask me anything” where it’s very normal to be online at a certain time and date, and to offer to continue the discussion at another arranged time and date if it overruns. Nobody is required to attend live (other than the subject for an hour or so initially, they usually...

But you separated out part of my point from the rest. It’s confusing and unpredictable and looks like he has gone because he thinks he’s losing. And then he comes back. And later is asking why nobody is engaging (at 4am CET). That’s why people are identifying unanswered questions. It’s a...