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  1. Cheshire

    David Tuller - Trial By Error: The Australian Situation

    This thread focuses the information about the Australian situation in David Tuller's recent blog. It has been split from this thread which focuses on the news about Esther Crawley in David Tuller's recent blog...
  2. Cheshire

    Action for ME has joined S4ME

    AfME have been on PR for a long time and they have never taken advantage of that. As someone else has said before, they acted as usual, tried to interact a little and fled away when questions started to become somewhat challenging. (it's so much easy to be in the safe space of their own FB page...
  3. Cheshire

    Functional Status and Well-Being in People with ME/CFS Compared with People with MS and Healthy Controls (2018) Kingdon and al.

    Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda https://link.springer.com/article/10.1007%2Fs41669-018-0071-6
  4. Cheshire

    David Tuller - Trial By Error: The Dutch Review; My Trip; Bristol's Silence

    Wow. If there are no changes in the final report, that is a very very encouraging news. Especially given the number of psychobabblers in the Netherlands. That makes the German guidelines produced not a long time ago look even more stupid and disconnected than before...
  5. Cheshire

    Medscape/Miriam Tucker: Much Can Be Done to Ease 'Chronic Fatigue Syndrome' Symptoms

    https://www.medscape.com/viewarticle/893766 See also this thread about Dr. Bateman's Summary of Clinicians' Summit March 2-3, 2018
  6. Cheshire

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I don't know if Ponting will manage to change things radically, but he seems willing to engage with patients:
  7. Cheshire

    The drugs do work: antidepressants are effective, study shows

    Another article Royal College of Psychiatrists leaders accused of 'dangerous' and 'misleading' comments on antidepressant withdraw http://www.heraldscotland.com/news/16077230.Psychiatrists_accused_of__dangerous__and__misleading__comments_on_antidepressant_withdrawal/?ref=fbshr And Sir Simon...
  8. Cheshire

    MUS on BBC Devon

    OMG, the explainations given by the psychiatrist at around 1h20 are just so unbelievably bad. Always the weird comparisons with the way our brain tricks us sometimes for a few seconds/minutes as an explaination for long life symptoms. The same dualistic shit about the mind and body being linked...
  9. Cheshire

    MUS on BBC Devon

    It starts at 1h05. The first patient talking was in fact suffering from depression, and got better with antidepressants and CBT. I think this is the very type of cases that makes doctors think MUS is a thing, when it's all about undiagnosed textbook depression...
  10. Cheshire

    Mark Edwards: What relationship do stressful life events, neglect & abuse have with functional neurological disorder (conversion disorder)?

    https://www.nationalelfservice.net/diagnosis/risk-factors/functional-neurological-disorder-conversion-disorder/ Reminder: Mark Edwards is leading an imaging study on ME/CFS to see if a common mecanism can be found with Functional neurological disorder. He has also (successfuly) promoted the...
  11. Cheshire

    Article in French Newspaper «J'écris ma souffrance pour affirmer que je suis vivant malgré tout»

    Well, at least France is not producing and exporting a massive amount of psych bullshit on ME (our old guard psychoanalists are too occupied with their own Scheiße on autism), but patients receive their fair lot of psychological weird theories...
  12. Cheshire

    Article in French Newspaper «J'écris ma souffrance pour affirmer que je suis vivant malgré tout»

    Well, in term of ME research, that is really true, as there is no research in France, appart from a handfull of small studies..
  13. Cheshire

    Book due out: "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery"

    Another article: 'Medical Symptoms That Medicine Can't Hear': A Conversation With Maya Dusenbery https://psmag.com/social-justice/medical-symptoms-that-medicine-cant-hear
  14. Cheshire

    Article in French Newspaper «J'écris ma souffrance pour affirmer que je suis vivant malgré tout»

    There are two issues here: one is the structure of the health care and the second is that of health professionals. The design of the French health care is IMO a good compromise between private and public. Nearly all GPs are independent workers, you pay them, and you are then reimbursed (70% of...
  15. Cheshire

    Article in French Newspaper «J'écris ma souffrance pour affirmer que je suis vivant malgré tout»

    For the first time in France, there is an opinion piece written by a PwME in a mainstream newspaper, Le Figaro (conservative), with not an inch of psychobabble in it! I quite disagree with the author on one point: he is presenting an idealistic picture of what's happening in the UK and US, and...
  16. Cheshire

    Trial By Error: A Letter to Archives of Disease in Childhood

    New letter from @dave30th to Archives of Disease in Childhood: Trial By Error: My Exchange With Archives of Disease in Childhood http://www.virology.ws/2018/03/07/trial-by-error-my-exchange-with-archives-of-disease-in-childhood/
  17. Cheshire

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    While I'm delighted to see Crawley out, and being replaced by Ponting, I believe for a true biomedical approach to be set up, there are still numerous obstacles to be overcome (like for example the worrying study led by Mark Edwards) Ex from the minutes: GM: Gabrielle Murphy* Edit: cross post...
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