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Hi all. BBC Radio Jersey very kindly interviewed me about my ME, today. It’s an hour-long interview, and you’ll find it two hours into this programme link, if you wanted to take a listen. ❤️ http://www.bbc.co.uk/programmes/p05x7wqd

Hi all. BBC Radio Jersey very kindly interviewed me about my ME, today. It’s an hour-long interview, and you’ll find it two hours into this programme link, if you wanted to take a listen. ❤️ http://www.bbc.co.uk/programmes/p05x7wqd

Really fascinating and heartening to read the minutes of the meeting and learn about the efforts ongoing regarding the review of NICE guidelines. It gives me hope. Some excellent observations made within the minutes and notes, including the need to call ME what it is: ME. I should note I am...

Thanks all for the feedback. I’m at the start of a steep learning curve, especially when it comes to different camps/interests etc among various charities and groups. I need to be really careful to ration my thirst for knowledge right now. Feeling increasingly delicate today. Think the payback...

Hi SummerSky For sure. The producer, Rob, asked me for the ‘types’ of people I wanted. I asked for a medical expert, somebody from a charitable/campaigning perspective, an employment law expert, and Jennifer Brea specifically. There were and are a million other things I’d like to do but the...

Sure am. Thanks, Strategist. It's a scandal, as I said on BBC Radio 5 Live this week. It's something I intend to say and do much more about as I develop trust with those in a position to be able to give me a platform to talk about these things.

Thank you both. BBC Radio 5 live have kindly made the hour's programme available as a downloadable podcast if you happened to want to hear it. I know some have expressed frustration that X/Y/Z wasn't covered though, of course, it's impossible to talk about everything in just one hour...

Everybody. Stop. Draw a deep breath. Please realise internal arguments are literally a waste of energy. Let a new day dawn and then resume this conversation in a healthy, calmer fashion. I understand where years, nay decades, of anger and frustration comes from - but the pages of it here are...

This is something I'm quietly working on right now to ensure, in the days and weeks before 12 May, there's coverage. Making contact with multiple TV, radio, print and online outlets. Will let you know.

For sure. Thank you for flagging it up.

Thank you so much, all, for your comments. I've had a quick count and since yesterday's programme I've now received more than 1,000 across Facebook, Twitter, Instagram, LinkedIn, YouTube and email. I didn't expect that. I've read all the comments here. I really appreciate the encouragement and...