The Science Bit: My letter to the BMJ regarding their lax editorial approach to bogus therapy paper
https://thesciencebit.net/2019/09/11/my-letter-to-the-bmj-regarding-their-lax-editorial-approach-to-bogus-therapy-paper/
By Brian Hughes
Here it is. I think it is pretty self-explanatory...
ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst
https://www.meassociation.org.uk/2019/08/very-severe-me-its-time-for-something-new-by-greg-crowhurst-16-august-2019/
This is the first of a series of blogs looking at pertinent issues regarding Very Severe ME and...
A message from Whitney on Severe ME Day
https://www.omf.ngo/2019/08/08/a-message-from-whitney-on-severe-me-day/
In recognition of #SevereMEDay, we would like to share this touching message of hope from Whitney (Ron Davis and Janet Dafoe’s son), which he conveyed to his mother with great...
A new – and very moving – article by Naomi Whittingham
Glimpsing the World: My Joy and Pain
https://alifehidden.com/2019/07/26/glimpsing-the-world-my-joy-and-pain/
There is an indescribable joy in experiencing the outside world after many months or years of incarceration. The dance of...
Having endometriosis on top of severe ME, I have found that taking vitamin A does help a little (and it is only a little) with some of the cramping-type pain.
Merged thread
Trial By Error: NHS ME/CFS Clinics Lax on Treatment Harms, Study Finds
http://www.virology.ws/2019/07/16/trial-by-error-nhs-me-cfs-clinics-lax-on-treatment-harms-study-finds/
16 July 2019
By David Tuller, DrPH
In the last few years, the Journal of Health Psychology has...
MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019
https://www.meassociation.org.uk/2019/07/mea-summary-review-the-role-of-mitochondria-in-me-cfs-13-july-2019/
Charlotte Stephens, Research Correspondent, ME Association.
Introduction
For many years, a leading theory of...
Trial By Error: An Update about the Pediatric MUS Systematic Review
http://www.virology.ws/2019/06/26/trial-by-error-an-update-about-the-pediatric-mus-systematic-review/
26 June 2019
By David Tuller, DrPH
This week I raised concerns about a second systematic review that cited the dung heap...
OMF: Stanford Genome Technology Center Applies to NIH
https://www.omf.ngo/2019/06/24/sgtc-applies-to-nih/
The Stanford Genome Technology Center (SGTC), under the direction of Ronald W. Davis, PhD, has submitted several RO1 grant applications to NIH to continue and scale up several projects...
Merged thread
Radio New Zealand: Chronic fatigue syndrome blood test - new hope for sufferers?
Radio interview with Dr Ron Davis
https://www.rnz.co.nz/national/programmes/ninetonoon/audio/2018701196/chronic-fatigue-syndrome-blood-test-new-hope-for-sufferers
Pioneering geneticist Dr Ron...
merged
David Tuller: Trial By Error: My Follow-Up Follow-Up with Dr Segal about LP Study Citation
http://www.virology.ws/2019/06/05/trial-by-error-my-follow-up-follow-up-with-dr-segal-about-lp-study-citation/
5 June 2019
By David Tuller, DrPH
Fans of Bristol University’s team of pediatric...
The Stanford Daily: Stanford Medicine professor fired for violating University rules of conduct
https://www.stanforddaily.com/2019/06/03/stanford-medicine-professor-fired-for-violating-university-rules-of-conduct/
by Elena Shao — June 3, 2019
Jose Montoya, previously a professor at the...
Trial By Error: Time to Retract the LP Study; Letter to Archives of Disease in Childhood
http://www.virology.ws/2019/06/03/trial-by-error-time-to-retract-the-lp-study-letter-to-archives-of-disease-in-childhood/
3 June 2019
By David Tuller, DrPH
Let me say this directly: It is way past time...
BMJ Journals: Annals of the Rheumatic Diseases: Autonomic and inflammatory changes in FM and ME/CFS and the contribution to signs and symptoms
https://ard.bmj.com/content/78/Suppl_2/1920.1
Abstract
Background Dysautonomia describes a group of conditions associated with a malfunction of the...
Three ME patients reveal the accusations they have endured
https://mol.im/a/7015737
Blamed for wasting doctors' time, branded attention-seekers and told their ailment doesn't even exist: Three ME patients reveal the accusations they have endured during their battle with the crippling...
David Tuller: Trial By Error: My Most Recent Exchange with Bristol
http://www.virology.ws/2019/05/13/trial-by-error-my-most-recent-exchange-with-bristol/
13 May 2019
By David Tuller, DrPH
Last month, I sent Sue Paterson, Bristol University’s director of legal services, a couple of e-mails...
The Canary: A DWP-backed ‘medical scandal’ could be blown wide open
https://www.thecanary.co/uk/analysis/2019/05/11/a-dwp-backed-medical-scandal-could-be-blown-wide-open/
Steve Topple
11th May 2019
A contentious Department for Work and Pensions (DWP) funded medical research project –...
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