Trial By Error: My Letter about MUS to the British Journal of General Practice
http://www.virology.ws/2019/05/06/trial-by-error-my-letter-about-mus-to-the-british-journal-of-general-practice/
6 May 2019
By David Tuller, DrPH
Reuters reporter Kate Kelland informed me in January that my habit...
ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019
https://www.meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/
Lady...
Well, he’s got the first sentence wrong -
Chronic fatigue syndrome (CFS), later named myalgic encephalomyelitis (ME)
- The name ME was in place years before CFS was invented.
Regarding the use of the term “malingerer”, a couple of quotes from “Magical Medicine: How To Make A Disease Disappear” by Professor Malcolm Hooper might be of interest –
http://www.margaretwilliams.me/2010/magical-medicine_hooper_feb2010.pdf
Page 84 -
On 20th October 2001 “Pulse” ran a...
For further details of the 2001 conference held in Oxford entitled “Malingering and Illness Deception Meeting”, see page 2 of “ME: who is attacking whom?” by Eileen Marshall and Margaret Williams - http://www.margaretwilliams.me/2005/me-who-is-attacking-whom.pdf
The Myth of “It’s All in Your Head”
https://depaulmagazine.com/2019/03/14/the-myth-of-its-all-in-your-head/
March 14, 2019
DePaul scientists work to unravel the mystery of chronic fatigue syndrome
By Abby Pickus
In 1980, a high school English teacher from Wisconsin named Pat Fero went on a...
From “Magical Medicine: How to make a disease disappear” by Professor Malcolm Hooper -
http://www.margaretwilliams.me/2010/magical-medicine_hooper_feb2010.pdf
Page 12 - there is evidence of abnormality of adrenal function, with the size of the glands being reduced by 50% in some cases
Page...
Moderator note: threads on the one study merged.
The Atypical Hypothyroidism in Chronic Fatigue Syndrome (ME/CFS) Plus a New Thyroid Subset?
https://www.healthrising.org/blog/2019/03/04/hypothyroid-chronic-fatigue-syndrome-thyroid-ntis/
Cort Johnson
Problems with the thyroid – the “gas...
Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents: a preliminary investigation in a case control study nested within a cohort
Maria E. Loades, Katharine A. Rimes, Kate Lievesley, Sheila Ali & Trudie Chalder
Received 18...
[I found this of interest, as my ME was triggered by a Hepatitis B vaccination that I was required to have as a student nurse.]
https://www.meassociation.org.uk/2019/02/pregnancy-m-e-and-vaccination-concerns-with-dr-charles-shepherd-15-february-2019/
“Dear ME Association,
I’m 7 months’...
http://www.virology.ws/2019/02/12/trial-by-error-bmj-amends-last-weeks-pace-article/
Trial By Error: BMJ Amends Last Week’s PACE Article
12 February 2019
By David Tuller, DrPH
Last Wednesday, the UK Health Research Authority released a letter reviewing its analysis of the PACE trial. Members...
Moderator note: Merged threads.
Trial By Error: A Bit More About Bristol’s Investigation
1 February 2019
By David Tuller, DrPH
http://www.virology.ws/2019/02/01/trial-by-error-a-bit-more-about-bristols-investigation/
Yesterday I reported that Bristol University, at the request of the UK...
Merged thread
MEA Summary Review: US study of onset patterns and course of illness in ME/CFS
https://www.meassociation.org.uk/2019/01/mea-summary-review-us-study-of-onset-patterns-and-course-of-illness-in-me-cfs-29-january-2019/
29 January 2019
Charlotte Stephens, Research Correspondent, ME...
Trial By Error: My Six-Month Review
22 January 2019
By David Tuller, DrPH
http://www.virology.ws/2019/01/22/trial-by-error-my-six-month-review-2/
So it’s time again to review my work and figure out what I’ve been doing. My crowdfunding from last April has been covering my half-time position...
Merged thread
Daily Mail: 'It's all in your head': Half of patients with chronic fatigue syndrome claim they are dismissed by doctors who say the illness is psychological
https://www.dailymail.co.uk/health/article-6580873/Half-patients-claim-dismissed-doctors.html
Almost half of people...
Ten Ways To Prove That Exercising Will Not Cure ME/CFS
https://www.healthrising.org/blog/2018/12/28/ten-ways-prove-exercising-not-cure-chronic-fatigue-syndrome/
by Cort Johnson
Your family, friends and even your doctor may, probably will at some point, prod you to get moving. They think that...
Merged thread
Could Poor Microcirculation Be Causing Chronic Fatigue Syndrome (ME/CFS)?
https://www.prohealth.com/me-cfs/library/poor-microcirculation-causing-chronic-fatigue-syndrome-cfs-88729
The idea that the blood delivery system is causing the problems with energy production is not new...
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