Search results

I’ve been re-listening to some older presentations on DecodeME and going through the analysis plan in more detail and trying to learn more about the processes involved to prepare my brain for whatever comes. Here’s a few thoughts, hey maybe interesting to others and maybe people with more...

Mine was by reading your post :) Very entertaining

On the one hand I do agree that experiencing awe and wonder has an impact on how we feel about things. I do agree that they are an important part of the human experience. And saying that is fine. Nice things are nice. The world is full of wonder. On the other hand I’m not sure what that’s got...

Do they sell services privately or are they focused on military personal? I’m not sure how it works in Belgium. But possibly because they’re a military hospital is why they care about rigour and results, that is they’re focused on finding effective treatments for personal.

Wrapping rehab in an app feels awfully like a rehash of the past. I haven’t been through this whole thread sorry, but thanks to those who’ve been digging into this. This approach may well be useful for some people who need this sort of support to recover from illnesses. How it helps change...

For me the question is, what would have more impact, changing the name or changing how people are seen and treated? Not that these things are a choice between those two, but sometimes I do wonder about where limited effort/resource/influence is expended and if failure to be able to change one...

So presumably we could find something like some people either having a different issue, or some low affinity antibodies which in behave a bit differently in some people with ME/CFS? This could be, in some people, downstream effects of what is really going on?

Good news. There’s so much that could be made more accessible. Which would work for people with many different conditions, and just convenience for others. And could even be cheaper to deliver! (I heard on a programme a little while back this is why there’s been an increase in at home things in...

Same, I had that exact pair then upgraded to the newer X series and they’re great, I now have X3A from a few years ago and X5A just bought https://www.3m.co.uk/3M/en_GB/p/d/b00037373/ https://www.3m.co.uk/3M/en_GB/p/d/b00037368/ I also tried some Bose noise cancelling headphones last week...

Lovely to hear @DMissa and I really enjoyed the talk. One of a number of great communicators and caring researchers we’re lucky to have. Looking forward to what comes out of the current project particularly in conjunction with all the other studies (obviously especially DecodeME). Pulling...

Should we consider the audience that isn’t deep into this? I wonder what someone unversed in all the history would make of this and if they’d grasp the point about things having been found but there being no reliable evidence for causal mechanisms? I suppose it depends on the target audience and...

Looks great in dark and light modes. Thanks @Tao Fogger glad you got to the bottom of the issue.

Given I had a serious kidney infection around onset or at least that was involved in my significant worsening I had repeated urine tests then and in the time after (along with the usual blood tests). There were nothing flagged. At least some of these, if not all, would have been when I was at or...

Oh I agree. And may have explained poorly. I was thinking maybe if your wider framework is changing, why would you announce changes for a particular disease before announcing that wider framework? One needs to fit within the other, so they’d logically come together or with the framework first...

To be clear, that’s not what I was implying at all. I understand and accept people’s cynicism, but I simply meant announcing a plan for changes to how care is delivered for a condition make sense to come in conjunction with an announcement about wider changes to how all care is delivered.

Not sure if this is the right thread but apparently the wider NHS 10 Year Plan is now scheduled for July, see this Times article. Whether this will impact the DHSC ME/CFS Delivery Plan I do not know, they’re not formally linked but it could make sense for them to come together.

I’m not sure if it’s the new forum software or how it was copied and pasted with formatting included, but FYI @Tao Fogger the last post is unreadable in dark mode (the text remains dark as well as the background). It’s fine in light mode but quite a few people browse using dark mode. Previous...

That reputable clinicians disagree on what inflammation is. Or as @Eddie says what various things mean. I do think it’s understandable that some are responding in the way they are, we saw some of these concerns here, there have been studies that show ‘things’. But I also think it misses the...

I and I’m sure others really appreciate the ELIABFs too!