Search results

It's just so frustrating how they keep dressing the mole up in a different outfit or package and expect us to buy into this new "shinier" version. It's the same doggone mole!!! Isn't that in itself the definition of insanity, i.e. doing the same thing over and over and expecting a different result?

Perhaps they should call it the gaslightning process?

But people that use them don't realize that. It's like a cigarette smoker. They can't smell what it's like until they stop and then they hate the smell of cigarette smoke. I used to have a dresser top loaded with fragrances. I didn't realize how much they stunk not even after a school friend...

Talking about head tilts and motions that tilt the head during the episodes by some posters makes me think it is the neck joints moving around. There have been a lot of posts lately on PR about CCI/AII affecting a lot of us who have hyperjoint mobility. I haven't been tested but I do get...

That's what I was going to say. This just sounds like more rationing of care and a back door way in for all those "experts" who say diagnostic testing just encourages pwME in our "fantasies" of actually thinking we have a disease. Arrrggg!!!:banghead:

Yeah, I read somewhere that hydrogen peroxide is actually a negative byproduct to some function in our system. My simplistic thinking says that it probably would be bad to give our bodies even more of it to deal with. Maybe someone here with a biological education might be able to add more to...

That's a very good thought. I always thought it was just that a cold or flu raised the temperature allowing the immune system to work on the hidden (retro) bugs for once. I think a lot of us are low-temp, though not everyone. So my own personal theory for a while has been that we never get...

The only problem I can see in this is, if it is someone presenting this from media/tv who is not well informed about ME/CFS, they might still end up interjecting the PACE info thinking they are doing thorough research and "presenting all options" when really they're not. We need someone who...

I'm just wondering how we know the genes are similar if no one has a bio-marker for ME/CFS? (At least that has been my understanding so far.) Sorry, it may be a dumb question but I just wondered. :oops:

The tweets regarding this symposium make me cry but in a good, relieved way. I'm so happy that we are making some progress. The author's words are also a balm. Thank you for posting this!!!!

This disease has made me pretty desperate to try things at times. I have whole dresser drawers full of herbals & supplements but I have never been this desperate. Plus, my first thought was that many insects have parasites in their intestines...maybe not after being processed hopefully with...

Did you do the 1-day or 2-day CPET? Just wondering because I am trying to schedule the 2-day and will need to fly out of state, take it and come back at a moderate to severe ME/CFS level? At this point, I'm about 70% sure I won't be able to but do need it for insurance. :( Edit: I'm sorry if...

I'm following your post though and still trying to figure out a way I could do this. I've had to eliminate so many foods over the years because of allergies. :bored: The problem is I develop new allergies if I eat a food too often. I've listed some of my allergy foods in my post above but I...

Allergic to most of those: egg, coconut, macadamia, peanuts are all no-nos for me and olive is suspect.:( Plus, I can't do cow's milk dairy but have found sheep yogurt and goat milk cheese are okay if I don't overdo.