Search results

This is probably too much for a solo project, but with a ME/CF group it can be done. 1. Don't let them off 2. Don't give up 3. Write everything down, with dates, times and details. 4. Organize, get some publicity. There are methods for doing this, one needs to get some press contacts. 5...

“but 30-40% will get you the same results as fully-funded within 3 years whereas 1% will take several decades.” Personally, I think the pace of progress with one percent funding is virtually zero. It is not enough for a researcher to make a career decision to work in this field, and it is not...

In my opinion, the mild cases are even more confounding, because they cannot be clearly diagnosed. I believe, based only n=1 of personal experience, that there is a mild phase of this disease that does not include the post exercise crash. But that is the unique feature that differentiates it...

Unfortunately Facebook’s junior Jacobins censor content that disturbs their special sensibilities. They have not applied that to us, but with another change of whim they could.

Clear thought? According to what I’ve read online, Camelford residents were issued a boil water advisory. That served only to concentrate the contaminant, and put some of it into their lungs while they boiled the water. Unfortunately, many trusted the words of the government before the...

thanks for doing this! Can you recommend a Biology 001 self study? That's starting at zero as i know nothing about biology, but I don't want a dumbed-down, chatty-with-baby-talk sort of popular book.

If it’s from a complete charlatan, yes. If it is from someone who has used reasonable biological assumptions and has had seen the results of using it on hundreds of people with this illness, then definitely no. Look up Rich van Konneyberg, who was of immense help to many of us. He was not an...

@Alvin Neither party is our friend in the USA. My disability benefits were quietly cut back to pay for the US ACA “healthcare for everyone“ program, usually called Obamacare. Let’s just say that after the fine print the actual result of ACA is that it’s not healthcare and it’s not for...

Unfortunately we are in a black hole region of medicine. A previous physician’s copy of PDR recommended amphetamines from my CFS condition. We both had enough sense to realize that that was probably not entirely safe, to put it mildly. Experimenting with things that are biologically plausible...

I haven’t digested everything in this thread. Does this apply to the culture grown in yogurt sometimes called MAF 878? Apologies if I am asking something that was clearly explained, I’m not doing that great cognitively.

@erin oops, this is OT. Mods feel free to delete. I thought one of the treatment options presented for final stage cancer treatment is palliative care: no chemo, just treating discomfort and helping the patient to make the best of their remaining time. It’s odd if that option is not offered...

“Bad things come in threes” In other news, fire is often hot.

So to me anyway it’s confusing. Occasionally there is a study cited hear that finds a brain inflammation or a change in brain temperature, but there are also studies finding nine. It certainly feels like something non-normal is going on in one’s brain; mild headaches, that don’t match up with...

Just to confound things, it’s been found that normal body temperature is not actually 98.6. Normal is within a small range and not a precise three digit figure, the average is a little under 98.6.

OK, that makes sense.

In the case of our illness, men get just as disabled with it as women. If that makes it sexist, then I don’t understand what the word means.

Well, in part because I’m just in a bad mood. But also it seems like the comment was going in the direction of “if only we had a different system, it would work better”. Inmyohpinny, if you take the same people & give them a system with more central authority, you get more abuse. Swap in a...

Was it better in the Soviet union?

But without the deconditioning narrative, how can we blame the patients?

Then again, think of how bad it would be to get the thing the vaccine is defending you from. There is no 100% safe option. Nature is harsh, there’s only one way out of it. If there was a screening test to find who was susceptible, then we might be advised to not get vaccinated, and thus some...