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    Whether to have a flu vaccination

    I insisted on getting the shot, this is actually a good reminder. I think any downside from the shot is 100 times less than the actual flu. So far that has worked out. I’m in a dense urban environment, so anything that’s going around is eventually going to land on me. I’ve noticed people...
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    Simon Wessely: ‘ECT is in my own advance directive’

    Yes, the information I had was third hand at best, but persuasive as it was within the context of a long article quoting individual cases with sad results from ECT. How certain what is the cause of those endpoint? I don’t know. On a topic like this, 3rd hand is often the best info we can get...
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    Lightning Process - discussion thread

    For Gupta and Parker, the disease is neither phys nor psych. It's financial, to their benefit.
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    Simon Wessely: ‘ECT is in my own advance directive’

    I recall reading that ECT used at a higher current/voltage is more effective, because it burns out areas of the brain. The same article (sorry, can't remember where, it was years ago) stated that the vendor of only approved ECT device would verbally instruct practitioners on how to open it and...
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    The CFS deconditioning hypothesis

    Agreed about the six minute walk test. It’s really like spitting on the patients; what useful life activity can you do by walking for six minutes? Go out your door, go do ONE simple errand and come back. Can you do that in six minutes? It’s as if the test is designed to avoid touching on any of...
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    The Canadian health minister confirms they have no plan to address ME

    Politicians respect power, not ethics. Wrong currency. Today, when they attempt to be ethical they make things even worse, because they are shallow little people, who do not understand human nature, history, or even themselves.
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    David Tuller: Trial By Error: The Cochrane Controversy

    Depends what we is meant by ‘training effect’. For aerobic exercise, “training effect” sounds like aerobic conditioning, meaning that your capacity to do it increases after doing it for a period of time. This takes place over a period of weeks with the shortest time to observe a change being...
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    2 Day CPET discussion - is it evidence that GET is harmful, and is it a biomarker?

    Depends what we is meant by ‘training effect’. For aerobic exercise, “training effect” sounds like aerobic conditioning, meaning that your capacity to do it increases after doing it for a period of time. This takes place over a period of weeks with the shortest time to observe a change being...
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    ME: The Fatigue Cover up - Greg Crowhurst

    I don’t know why, but it seems that any advocacy that had its birth in social media or involve a hastag turn out to be shallow and a disservice to the people he claims to help. I am not saying that this is the case here, I have not even read the page. I have seen this with another hashtag...
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    Netflix "Afflicted" - ME included

    Hollywood is not in the reality business. Neither is the news media.
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    BMJ: HPV vaccine safety: Cochrane launches urgent investigation into review after criticisms

    It’s not possible to include testing on people with every possible illness. In our case, vaccines in general are contraindicated, so you can’t ethically test on people whom you know to have M.E
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    Nature: She’s the world’s top empathy researcher. But colleagues say she bullied and intimidated them

    Same thing, different day. A witch hunter is generally a witch, a crusader for social justice is generally antisocial and bent on creating injustice. Human nature hasn’t changed for 50,000 years, it’s not going to change in the next five minutes.
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    UK among worst for life expectancy rises

    That whole country is busy committing national suicide, this is just one of the markers. You did say you wanted speculation ;-)
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    ScienceAlert: Scientists Have Found an Important Reason You Might Want to Reconsider Taking Probiotics

    This is interesting. I have read that the amount of microbes in a probiotic is very small compared to what is normally established in your system, and that the governing factor is the amount of fiber present in your system. I don’t know if that’s true, or if it’s the complete story. Does anyone...
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    Sussex-Wide CFS/ME Service: Out of 973 patients referred, only 105 saw the doctor

    Bankruptcies due to medical expenses are real but not common. There was a fake study promoted by a politician who had a particular agenda which trumpet that conclusion, however if you look at it a bit more closely it falls apart. People do become bankrupt after losing their job due to inability...
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    Sussex-Wide CFS/ME Service: Out of 973 patients referred, only 105 saw the doctor

    We do have an overpriced, overly complicated, financially burdensome system, and you can be in a world of hurt due to medical costs. I am also confident that the people here who believe they can fix and remake it are fully capable of making it worse.
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    Sussex-Wide CFS/ME Service: Out of 973 patients referred, only 105 saw the doctor

    It sounds like if NHS was better funded, one might have a choice of regular, super, and ultra versions of CBT and GET. Our system is getting worse for ME/CFS patience, it’s still 1000% better than NHS. The worsening here seems to have come about due to the very smart people instituting a...
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    Sussex-Wide CFS/ME Service: Out of 973 patients referred, only 105 saw the doctor

    I am so glad we do not have an NHS in my country. Yet.
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