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    Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Holtzman et al. (2019)

    Heat, noise (from nearby), standing: Imma guess that 80% of us would say those are sure to cause a crash, yet they’re not on any official list I know of. Personally, I’d say that if a person can tolerate standing in place and heat roughly as much as before they got sick, they have something...
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    Healthcare workers during corona want better work conditions, not psychological help

    Welcome to Interesting Times! Brought to you by the Boomers. (not exclusively by them)
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    Healthcare workers during corona want better work conditions, not psychological help

    We seem to be entering a stage of civilization where the only goal is the elevation and preservation of Me. A profession becomes a ticket, a professional to client transaction becomes a feeding occasion. It’s not confined to us and our disease, it’s not confined to medicine, it’s not at all...
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    What they mean by evidence based medicine.

    Sometimes they just never end. Not in the lifetime of those affected at least.
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    BPS attempts at psychologizing Long Covid

    That family member isn’t suffering from a terror/phobia, they’re simply a wretchedly bad human being. ..... this will probably offend someone, but it has to be said.
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    BPS attempts at psychologizing Long Covid

    How many millions for this crxp? And we think it’s generous when 2 or 3 M gets allocated to the disease/disease family/cthulu-forcefield we deal with.
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    News from The Netherlands

    Well, I’ve lived long enough to see something encouraging happen. O/T: From the little I’ve seen of the Dutch, they’re generally fit, healthy and rather attractive. If that’s not true, it’s a pleasant illusion. Having the success in making your own health probably makes it harder to...
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    The Stanford Daily: Stanford Medicine professor (José Montoya) fired for violating University rules of conduct (june 2019)

    I know nothing about the details of whatever happened - or didn’t happen - but I do know we can’t afford to lose people like Dr. Montoya. He started treating us and doing research when is was a professional risk to do so.
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    Judy Mikovits

    Does she not understand what she’s doing, or has she no shame about the harm she is willfully doing?
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    Are unexplained adverse health events following HPV vaccination associated with infectious mononucleosis?, 2020, Krogsgaard et al

    Wellll, N of 1 and all, but I decided to get the HPV shot despite having M.E., we’re in a low risk for that stuff but high risk for vaccines. But I tolerate the flu shot, so I thought I’d try it. Result: The next day, I felt exactly as worn out as I always do. And the day after, and the day...
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    Are unexplained adverse health events following HPV vaccination associated with infectious mononucleosis?, 2020, Krogsgaard et al

    Huh. I thought it was standard practice to not off a vax while a person is feverish, even if they ‘want to get it done today’. Then again, rules seem to garner little respect these days.
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    Article Independent: ‘As lockdown eases, those of us with chronic illnesses must not be left behind’ June 2020

    Life has left us behind. We weren’t included in the media hype, nor will we be next time. It’s not the story they want to market.
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    Open Fred Friedberg (University of Stonybrook) Hydrogen Rich Water; Heart rate variability biofeedback in CFS

    Room temperature hydrogen? So, ahh, am supposta put that in the fridge, then the fuse-ion box.
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    'Plague of Corruption - Restoring Faith in the Promise of Science' - (p)review of book by Mikovits & Heckenlively

    A medical work co-written by an attorney suggests to me that the content is snow, not science.
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    Research news from Bhupesh Prusty

    Clinical evidence. It’s one of the criteria my doc used to diagnose MECFS.
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    "Soap"

    So it sounds like “wash your hands” won’t do for anyone born in the last 60 years. We were not taught how to wash our hands, there is actually a method and an ordered series of steps that must be followed or one is just splashing microbes around. I’m a little cheesed that I was never taught...
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    "Soap"

    Ordinary soap, any brand. It is one of mankind’s most wonderful inventions. The virus depends on a lipid envelope, Lipid means fat. Soap and water emulsifies fat, very efficiently ripping the virus into useless little bits. Ya just gotta use handwashing technique so that the soap and water get...
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    Coronavirus - worldwide spread and control

    On a national scale, the best thing is simple surgical masks which prevent you from knowingly or unknowingly transmitting it to others. Those are cheap enough you can toss them several times a day if need be, and much less uncomfortable then a multi layer N95. The thin masks are not much good...
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