Search results

  1. Esther12

    NICE - Conflict of Interest Report from 2015

    I suspect that this is the problem. Lots of these sorts of bodies can have a policy on COIs that is more effective at letting them act as if they've addressed problems with COIs than actually mitigating the bias the results from problems with COIs.
  2. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Interesting that there isn't anything on the Science Media Centre website about their briefing.
  3. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    If they only had funding for a very small study, I can see why they'd want to do what they could to avoid overlooking any possible signal. Even with that very loose criteria they still only ended up with 18 participants classed as having persistent fatigue. It's not ideal, and it seems that...
  4. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Looks like the Guardian's coverage includes comment from Sharpe, but it doesn't seem to be on their website yet: https://www.pressreader.com/uk/the-guardian/20181217/281775630256669 "It may give us some clue down the line. If the thing is triggered by an abnormal or excessive immune response...
  5. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    No, but sometimes they don't until the day after with a midnight embargo. Also, I get the impression that they don't openly declare all of their involvement with CFS media management. I could just be wrong about them being involved with this though.
  6. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    BBC coverage by Laurel Ives includes mention of Monaghan, so that's a bonus: https://www.bbc.co.uk/news/health-46570494 Edit: I somehow missed the "Others defended the treatment" last night, but as @Sly Saint mentions later on: "I don't remember any of the other MPs defending the treatment...
  7. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    I just had a quick skim of the paper, mainly looking for references to Moss-Morris' shit post-infection work (I couldn't see any). Here were a couple of bits I thought could be of interest: I hadn't heard of that somatization study. I agree with others saying that this work is of some...
  8. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Maybe a premature assumption on my part. I saw someone else say so (in addition to NelliePledge), and it looks like it to me, but I shouldn't have acted like we know they did.
  9. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Independent coverage with some quotes from Pariante: https://www.independent.co.uk/news/health/me-chronic-fatigue-syndrome-myalgic-encephalopathy-immune-system-virus-infection-diagnosis-gp-kings-a8684111.html The articles framing of *challenges CFS is 'all in the mind'* isn't useful imo.
  10. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Just saw Kindlon tweeted the abstract to: http://sro.sussex.ac.uk/80506/ Looks like it is the results we already knew about, which still leaves the puzzle of why they decided to push media coverage of this. Maybe this is laying the groundwork for Wessely going to the House of Lords, or a PACE...
  11. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Sarah Knapton's Telegraph coverage is on yahoo news, again, didn't much of a reason why they'd be hyping these results like this: https://uk.news.yahoo.com/chronic-fatigue-syndrome-may-triggered-000100009.html edit: This piece does start with: "Chronic Fatigue Syndrome may be triggered by an...
  12. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    It does seem odd. Maybe they just want to hype the work of researchers who won't criticise PACE?
  13. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Kate Kelland for Reuters: https://www.reuters.com/article/health-chronicfatigue/study-finds-chronic-fatigue-clues-in-overactive-immune-response-idUSL8N1YL0EU She didn't seem to add any of the unpleasant spin we saw in her Cochrane piece.
  14. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Daily Mail coverage: https://www.dailymail.co.uk/news/article-6502357/Chronic-fatigue-condition-caused-active-immune-study-claims.html
  15. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    I hope that if any patient groups are asked to comment they don't join in with over enthusiastically hyping this research. @Action for M.E. @Russell Fleming (Is Russe;l the best person to tag for MEA? I couldn't find another). I'm sure that there often is a view that it's worth trying to sound...
  16. Esther12

    A general thread on the PACE trial!

    I still think of myself as 'new' to PACE, but I'm probably not any more. I agree with people's points, but as the PACE authors were putting such a positive spin on their results it would be very difficult to have just cited their work as evidence CBT/GET weren't effective. Articles like the...
  17. Esther12

    Wesselys Mental Health review could also replace Mental Capacity Act

    Also this from the Lancet: Mental health law: still no parity of esteem https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(18)33114-3/fulltext Maybe I'm just being paranoid, but to me it didn't seem to make it clear that they wanted 'parity' by just increasing the power/rights of...
  18. Esther12

    A general thread on the PACE trial!

    This drama should have ended two years ago!
  19. Esther12

    David Tuller: "Trial By Error: The View From Norway"

    Now I can say that I know what I'm talking about.
Back
Top Bottom