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As a non-native english speaker I shouldn't suggest anything, so how about 'ME/CFS Digest'? That way people who are searching for digestion problems in ME could find it by chance. Half-joking.

Could be cultural/language differences that are playing a part too. As for me, it's very difficult to think that it's not showing scepticism, in negative meaning, about the (existence) of ME/CFS. Just like people "critical to EU" or "critical to foreigners" are actually very much holding just...

@Kalliope I don't know but this was published by The Finnish Association of People with Physical Disabilities which is I believe the largest in Finland, and they have 143 member associations(according to their website). I think it's quite possible that some mainstream media could be interested...

From the paper, one patient explains how they were diagnosed. Translated by me. ”By private doctor. According to TAYS fatigue workgroup the criteria for diagnosis is fulfilled but diagnosis could not be made because of previously diagnosed depression. I have complained on the basis that it is...

Didn't read all the 100 pages but checked parts that seemed interesting. 308 people with ME/CFS (G93.3) diagnosis answered the web survey. 85.1% were female. Average age was 44.6 years. 51.6% saw their illness severity as mild. Two out of three reported having financial difficulties. Three out...

I realise that just about everyone is talking about magnesium deficiency when talking about magnesium, but what about hypermagnesemia? I had a look on my older lab results and noticed that I had my serum magnesium checked twice 3 years ago 6 months apart. The reference scale used was 0.71 -...

You could also think this as if you were predisposed to have this condition, if there is such thing, perhaps you would have gotten it with another infection next year. I didn't tick the mask boxes because I've spent my last 5 years at home. For about 1-2 years now I've only met regularly one...

I got my whole genome sequenced 2 years ago. Haven't found many good leads that would explain my illness yet though. But there's this one mutation in TSFM (Ts translation elongation factor, mitochondrial) gene that's marked as pathogenic in ClinVar that I've been pondering about. It's quite rare...

I'll add myself to the group of people that have had elevated or slightly over reference scale liver values without drinking much alcohol, now for over 15 years at least.

I've found a similar pattern to me. I've also noticed that if I don't eat at evening, and then I sleep/rest for about 12 hours, there's a good chance that I wake up feeling quite ok. Then after breakfast comes few hours worse times before I start to get better towards evening again. Usually.

I haven't drank at all after I got more ill. Earlier I could drink, but just 1-2 beers usually made me very tired, apathetic, nauseous and I tried to drink my second glass as long as I could before I'd had to order a possible third. Just to keep company to friends. I've no idea how it'd affect...

Having a full beard and chronic stuffy nose I can only think of taping my mouth with horror. "Forgetting" to breath, then suddenly brain remembering that oxygen is quite essential and gasp for breath. But being unable to open the mouth or breath well trough nose the only choice is to quickly rip...

Showing a screencapture of my last year's sleep data from my smart watch (hope I'm doing it right!). The reason I'm not showing this year's is that it became uncomfortable to wear the device so I didn't wear it for about 6 months and the graph doesn't look nice. Although not perfectly accurate...

I can easily do both of these tests on both sides. As for the wrist test I've been thinking that it may not be that accurate. I believe my fingers are not much longer than normal (arachnodactyly), but my wrists are just very thin.

Even though this is written as opinion piece, it's still interesting because it has over 60 signatures on it. Most by physiotherapists, then a few nurses. Probably organized by Hanna Markkula who is a physiotherapist and has been very active in recent years promoting information about ME/CFS and...

Mine was low fat. I made it 1/4 rye flour, 3/4 wheat flour. Tomato sauce, seafood and vegetable toppings. No cheese ;)

The "pizza graph" from @chillier is similar to what I also get from for example eating a pizza. Actually I did test my blood glucose levels few days ago before and afer eating a pizza. Before it was 5.5mmol/L. 30 minutes after it was 8.1mmol/L. 90 minutes after it was 11.9mmol/L. Didn't take...

@rvallee well said. There's also the worrying trend lately how LLM's are being trained on data from Twitter, Reddit, Facebook and so on. I can't see better results coming from that either! Already people are getting injured or even probably killed by believing bad advice from AI. There has to be...

And this is how I got a diagnosis for severe depression. My doctor agreed that I'm not depressed but to apply for disability benefits it would be good to do it with a depression diagnosis. Well, my application got rejected twice, complaints got rejected and in the end I'm still diagnosed with...

For me tinnitus has been one of main signs to help with pacing. When I notice tinnitus getting worse it's time to stop everything and rest! Usually I can confirm it with increased pulse (resting pulse from 60 to 90-100) and mental irritation level among other things. Oh and I too can remember...