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  1. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    It’s hard to read full stop for me. The ME Association magazine is on paper and I struggle with that. I don’t see why single column would have smaller font size. Products designed to be printed out and read online should all be designed to accessible - there are guidelines on how to do...
  2. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    ME Assn insist on using columns :banghead:
  3. NelliePledge

    Who is Simon Wessely?

    Probably posted that tweet to get a buzz from getting a couple of responses and people actually reading their tweet for a change rather than tumbleweed
  4. NelliePledge

    Anyone else in the U.K. had a letter about a covid testing study?

    No problem they call it the swab test so that’s fine I hadn’t gone on to the website to look at any details possibly this is all explained there.
  5. NelliePledge

    Anyone else in the U.K. had a letter about a covid testing study?

    So did you have to do both nose and throat for the same test - the swab test consists of two separate swabs?
  6. NelliePledge

    Anyone else in the U.K. had a letter about a covid testing study?

    Yep that’s in the letter it’s pretty comprehensive.
  7. NelliePledge

    Anyone else in the U.K. had a letter about a covid testing study?

    Ooh good point @Wonko they should be doing a different study. All/some of the folks who have suspected Cv should be asked to do both.
  8. NelliePledge

    Anyone else in the U.K. had a letter about a covid testing study?

    I’ve had a letter asking if I will take part in a study by Imperial College London comparing two home tests swab of nose & throat vs saliva. It says the swab ‘May cause some mild short lived discomfort’. I’ve heard that it’s quite unpleasant. i feel like I should do it as I’ve been asked...
  9. NelliePledge

    Dutch Minister of Care letter to Parliament re ME/CFS

    Blimey that sounds really good. Congratulations to all involved:thumbup:
  10. NelliePledge

    Question: Coronavirus & home sewn masks?

    Think I will have to order a suffragette badge for the avoidance of doubt ;)
  11. NelliePledge

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    Has anyone responded to this? If not maybe worth contacting Tymes Trust for info on youngest children @dave30th
  12. NelliePledge

    Question: Coronavirus & home sewn masks?

    I’ve ordered a mask in suffragette green & purple stripes from radical tea towels not cheap but I will enjoy wearing it.
  13. NelliePledge

    Simplytreatment -U.K.

    Heard back from M E Association that they are indeed aware and raising it with authorities.
  14. NelliePledge

    Who is Simon Wessely?

    I bet it did. Made me smile to see your summing up of him for what he really is.
  15. NelliePledge

    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    This is making me fume they are just blatant. And it doesn’t give much faith in James Lind surely they should be insistent on the patient engagement side that’s supposedly what they are there for. wondering if @dave30th would be interested in this latest snake from the MUS hydra head.
  16. NelliePledge

    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    What patient organisations are involved in this? It should of course be a wide range. But if this is the first we’ve heard of it looks like they are attempting to fly under the radar. How did they recruit the patients? the survey needs sharing by ME organisations. People with ME need to...
  17. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Oh good grief can you tell I’m not very ‘alert’ today :whistle: sorry @Robert 1973 and @Simon M
  18. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Great work @Simon M :thumbup: hope that raises a few eyebrows
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