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so it’s a pyramid/franchise - not Very successful as it’s been going 15 years and only got 15 locations - assuming it’s one ‘technician’ at each location. https://www.rectoryhealthcare.com/join-our-network/

Yes full of tripe I reckon

If desperate people will try anything

I have emailed MEAssociation in case it’s not on their radar.

@Jaybee00 i echo what @Barry said about PEM. Like his wife I’m at the ‘mild’/moderate borderline. I experience my worst level of PEM as a flare up of flu type symptoms/laryngitis/swollen glands which means I have to spend more time in bed or on the sofa but I’ve never been so ill I couldn’t get...

https://www.simplytreatment.co.uk/treatment-process/ This organisation popped up as a promoted result in a google search I did. their 2 or 4 hour process involving a ‘scan’ is claimed to be a treatment for a shopping list of conditions including ME........ which seems plausible - not I...

I don’t think that most patients are that aware of the different criteria - they will accept the diagnosis given by their GP or specialist. It’s only when you get involved in some parts of the online ME community that you become aware of criteria - in the U.K. people will be aware of the NICE...

Is it done on a weekly basis possibly would be covered in next edition?

:wtf:

Fair point. At least it’s something. I could have been more open to his comments if had had some humility about his own responsibility in the situation. But yes as a chip in that status quo it Is of use. ETA. I suppose change is going to result in similar conversions which we will have to...

Good grief Jeremy Hunt was Health Secretary between 2012-2018. He can’t seriously be attempting to claim any credit for this research existing. Although if he’s claiming that presumably he’s happy to take responsibility for everything that’s wrong with the status quo in the NHS approach to...

As gradual onset only getting diagnosed approx 10 years after my health started deteriorating noticeably I’ve got a few possible triggers none of which were followed by anything that seemed to be anything approaching ME symptoms first bad gastroenteritis followed 3-4 weeks later by chicken pox...

Gone into competition with Kimberly-Clark well known manufacturers of top quality paper products @rvallee

That’s excellent

‘Look into my eyes’.......:sneaky:

@Andy Sonya C has tweeted on her personal twitter yesterday that 3300 signed up in the first 12 hours sorry no oomph to search for it. I think I saw it retweeted by @Simon M but possibly it was someone else

I am mild/moderate I have had just a handful of experiences of tremors - internal shaking inside my torso and I eventually identified what I think was provoking them which was low dose of pregabalin I have on prescription. Tremor is a common side effect. Obviously everyone is different and...

Ooh good comms angle down the line:thumbup:

I’ve shared the guardian article on Facebook but also got a bit carried away and pinged it to most of my friends and family on messages. Never done that before but I feel this gives me a really positive message that I can use to highlight ME. Feeling chuffed. As well as the actual research...

yes very much agree I don’t even understand what point he’s trying to make about post covid-patient activists it seems to imply ME people will join the ranks of post covid folk which is a bizarre way of seeing/putting it.