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  1. NelliePledge

    Impact of symptom focusing and somatosensory amplification on persistent physical symptoms: A three-year follow-up study, 2020, Barends et al

    Yes an absolute mess. What sprung to my mind was an occasion when I was focussed on pushing through the flu type symptoms I’d got up and washed dressed set off driving to work and after 1/2 a mile a lightbulb went on that I really wasn’t well enough to be behind the wheel and therefore should...
  2. NelliePledge

    Impact of symptom focusing and somatosensory amplification on persistent physical symptoms: A three-year follow-up study, 2020, Barends et al

    I reckon most people with chronic illnesses literally do the opposite of symptom focussing. Anyone with gradual onset ME will have gone years undiagnosed pushing through symptoms.
  3. NelliePledge

    France: Bio-Modelling Systems to start phase II clinical trial(s)

    What do they mean by energetic treatment? Are there any specifics?
  4. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This. The decisions were in the past. The impact of the decisions is in the past, present and the foreseeable future.
  5. NelliePledge

    Covid-19 - Psychological research and treatment

    See - the psychosomatic nutters aren’t all on this side of the pond.
  6. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Just a heads up that you’ll need some good luck finding any actual chicken in the fray bentos pie @Wonko i bought some fray bentos pies for my last food bank actual food donation before I swapped to giving them cash. I always try out the products myself so I know whether they are reasonably...
  7. NelliePledge

    Coronavirus - worldwide spread and control

    So apparently the U.K. think quarantine (of sorts) for inbound air passengers will be a good idea but only from the end of May:banghead: https://www.bbc.co.uk/news/business-52594023
  8. NelliePledge

    Open Fred Friedberg (University of Stonybrook) Hydrogen Rich Water; Heart rate variability biofeedback in CFS

    So it’s possibly not going to cause physical harm to those who rush to try it for themselves but as usual it will definitely damage their budgets. I find myself unable to summon any enthusiasm at all. Presumably one day someone is going to have some kind of genui breakthrough but I’m far to...
  9. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Tagging @dave30th just in case you’ve not seen this evidence that at least some post covid are getting handled as MUS
  10. NelliePledge

    Trial By Error: CBT and Irritable Bowel Syndrome

    Maybe their whole announcement was just sarcasm to test out the journalists
  11. NelliePledge

    How badly have UK proponents of Medically Unexplained Symptoms misled the medical community?

    Can’t manage to read that Facebook is very dense text and with limited formatting and no white space it is not ME friendly.
  12. NelliePledge

    Advice on mask-wearing to protect against Covid-19

    I’m sticking with the scarves I already possess lots of for now as I’ve only been out 3 times in the last month. I have spotted lots of crafty folk on Etsy seem to be turning their hand to home made mask production and sales. If it becomes the norm I’ll probably ask one of my relatives who has...
  13. NelliePledge

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    When I was undiagnosed and still working I spent about 3 months going to aqua zumba with a friend it was on my non working day when I had reduce to 4 days. The class was 9.30 start I used to have to push myself to get up to get there in time and would end up in bed for the afternoon. Had to stop...
  14. NelliePledge

    Advice on mask-wearing to protect against Covid-19

    BBC countering with if the public have masks it will affect NHS supplies o_O https://www.bbc.co.uk/news/uk-52363378?intlink_from_url=https://www.bbc.co.uk/news/health&link_location=live-reporting-story
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