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Unutmaz is on Twitter and seems worth following. He is making supportive comments around patient interaction.

e I don't think this has much interest for ME because they are talking about repairing Myelin. But I think it is a good example of drug re purposing. https://www.ucsf.edu/news/2017/10/408646/allergy-drug-improves-function-patients-chronic-injury-multiple-sclerosis

We're so glad to share that Unrest, Jennifer Brea's documentary film about ME, is coming to Watershed in Bristol! Sunday, OCTOBER 22, 15.10 Watershed 1 Canons Road Harbourside Bristol BS1 5TX https://www.watershed.co.uk/whatson/8541/unrest/ @Kina I couldn't find an events forum so posted...

The question I've always wondered about is does Nice give doctors cover for not talking about potential side effects of GET. If the guidelines are under review then perhaps that makes the approach of not talking about the potential to make people worse even less justifiable.

Although I think it would be good for Crawley to speak to an audience who really believe in open data. Although I'm not sure many scientist who claim to believe in open data really do.

I'm about to cancel the Guardian so I may tell them this is the final straw.

I will have a look for different addins over the weekend. I'm off work next week so can spend some time on set up things

I think we need to do our best to ensure that they get the right participation from patients rather than people who will rubber-stamp things.