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Yes it’s really tricky ....I can’t believe that attitudes will change in the Bristol bath area very quickly though ...more like lip service and carry on doing what they are doing. To be honest if they ditch GET that’s the biggest win. I worry about the “interpretation” of CBT and how that will...

Up until about 4 weeks ago I was exactly where you are in terms of adapting the clinics ....however after listening to various other perspectives I’ve moved my position. I think these would be abused (particularly in the case of children) so I’ve gome off the idea. I think all of the positive...

I think we should all try and get on the same page as @Jonathan Edwards suggests. That means repeating over and over that there is no cure or understanding of aetiology yet so no service is better than fake service. Especially as the fake service undermines the patients basic rights to social...

The thing that interests me the most are the diagnostic markers ...we desperately need something to start biomedical research advocacy proper and to put the final nail in the bps coffin. Answering the infection vs immune activation question will also help focus research. I just hope that we...

I’m thinking this figure may be slightly overinflated :p:rofl:

The popularity of gluten free has been growing significantly since around 2005 whereas at a similar time organic food popularity started to decline. Glycophosphates have been used on most crops since the 1970’s ....I’m pretty sure that the two things can’t be connected ...why would it only be a...

It still comes back to scale though and timeframe....so if say something significant happened over the course of a short period of time say a year somewhere between 2000-2005, then perhaps you would then see a large swing to free from products a few years later building with the growth we’ve...

But why would that have happened so suddenly for so many people? That’s what I keep coming back to. If you look at the growth of the popularity of free from it is only over a very short period of time. Also glycophosphate is found in loads of things not just wheat and including quinoa, so you...

I think MS is too far gone ..he seems to be lost amongst the smoke screens he’s created. He is now tying himself up in knots. Nice that he’s listening though. The thing I don’t get is what behaviours he thinks are at play? I was tested for depression and anxiety before they gave me a...

Quite a balanced article that explains the problems behind all the hype. The main problem ...guess what? ....poor sampling and no context for the real scale of the problem (once you remove lifestyle free from’ers or those that just have got wind from eating too many carbs/eating imbalanced...

This...absolutely this.

Listened to the 3rd episode last night. It was great hearing CM speak with the passion and indignation that we all feel and combined with jen’s Speech was quite inspiring. Well done @Gary Burgess another good one. I think these are going to become quite good awareness tools to send to family...

My question is: Given his positive comments about Unrest and the objective around “raise awareness of the disease”, does he think the CMRC should take a more proactive role correcting misinformation in the press about ME and if so how does he propose doing this?

My view of psychiatrists is coloured by my experience....mostly ghastly. I’m also lucky never to have had a mental health condition, although I have had experience of a number of family members that have suffered with poor mental health. I do think that behavioural science is a fascinating and...

And if you weren’t going to die from nuclear war it was AIDS.

No we all think it’s shit

My preferred use of baking soda is in nice sticky gingerbread. It’s great that I’m boosting my immune system at the same time...it’s also got ginger in it so it must be good for my digestion.

It never ceases to amaze me how discriminatory/prescriptive some people like to be...I sometimes think these views would eventually have us all excluded. We need a biomarker and all this rubbish goes away. Speaking as a person with ME, CFS or whatever you want to call it without enlarged lymph...