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  1. Dolphin

    Chronic Illness Inclusion Blog post: It’s not ME, it’s you – can the chronically ill embrace the social model?

    An observation I have is that in Ireland anyway some people with visible disabilities get dozens of hours of personal assistance to allow them not be that disabled by their disability e.g. the Leaders programme, yet people with chronic illnesses such as ME can struggle to get one or 2 hours a...
  2. Dolphin

    What Doctors Don’t Tell You: ME: the cure that went away

    The fraud angle seems a slightly odd way to look at things. But a journalist doesn't have to do agree with all the actions on which they report.
  3. Dolphin

    The Canary: The truth about NHS research funding that should shame the government

    (Just copying a message I wrote last year on Phoenix Rising) I'm aware of a lot of efforts to create pressure of various sorts in the UK over the last 15 years or so. - Action for ME ran a 1% campaign, calling for £35 million per year to be spent on ME research, 1% of the total cost per year...
  4. Dolphin

    A general thread on the PACE trial!

    (Probably not very important) Not to be confused with Richard Horton of the Lancet ---------- Forwarded message ---------- From: 'Dr. Marc-Alexander Fluks' fluks@combidom.com [LocalME] Richard Holton's 3rd Uehiro Lecture: PACE Source: Practical Etics Date: May 28, 2018 URL...
  5. Dolphin

    "Is fatigue a disease-specific or generic symptom in chronic medical conditions?" (Dutch CBT proponents involved)

    http://psycnet.apa.org/record/2018-23402-001 Is fatigue a disease-specific or generic symptom in chronic medical conditions? Journal Article Database: PsycARTICLES Menting, Juliane Tack, Cees J. Bleijenberg, Gijs Donders, Rogier Droogleever Fortuyn, Hal A. Fransen, Jaap...
  6. Dolphin

    Study shows yogurt may dampen chronic inflammation linked to multiple diseases

    This adds to one's calories. One would need to cut down other calories to compensate. Moving towards smaller meals has helped me lose weight.
  7. Dolphin

    Reduction of glucocorticoid receptor function in chronic fatigue syndrome

    Free full text: http://downloads.hindawi.com/journals/mi/aip/3972104.pdf Source: Mediators of Inflammation Preprint Date: April 20, 2018 URL: http://downloads.hindawi.com/journals/mi/aip/3972104.pdf Reduction of glucocorticoid receptor function in chronic fatigue syndrome...
  8. Dolphin

    Long-term sequelae of sporadic cryptosporidiosis: a follow-up study

    Another infection that leads to long-term symptoms including fatigue. I hope they follow-up patients again at a later stage. Free full text: https://link.springer.com/article/10.1007/s10096-018-3268-9 European Journal of Clinical Microbiology & Infectious Diseases pp 1–8| Cite as Long-term...
  9. Dolphin

    Exercise Intolerance in Preload Failure Treated with Pyridostigmine (2018) Faria Urbina et al (mentions ME/CFS & POTS)

    American Journal of Respiratory and Critical Care Medicine 2018;197:A6146 Exercise Intolerance in Preload Failure Treated with Pyridostigmine M. Faria Urbina 1, R. Oliveira 2, A.L. Oaklander 3, A.B. Waxman 1, D.M. Systrom 1...
  10. Dolphin

    Couple-based stress management intervention and Chronic Fatigue Syndrome (CFS) biopsychological processes

    Ph.D. Thesis Milrad Via Dr. Marc-Alexander Fluks Source: Univerity of Miami Date: May 3, 2018 URL: https://scholarlyrepository.miami.edu/oa_dissertations/2049/ https://scholarlyrepository.miami.edu/cgi/viewcontent.cgi?article=3081&context=oa_dissertations Couple-based stress...
  11. Dolphin

    "Humanitarian History and Practice" (Manchester, May 8)

    (I wasn't sure which forum to post this to) Somebody sent me this saying: https://www.eventbrite.co.uk/e/humanitarian-history-and-practice-tickets-45230075373?aff=erellivmlt
  12. Dolphin

    Anyone know the studies claiming to show if ME patients believe won’t get better they will not?

    J Psychosom Res. 1998 Jul;45(1):77-83. Illness beliefs and treatment outcome in chronic fatigue syndrome. Deale A1, Chalder T, Wessely S. Author information Abstract Longitudinal studies have shown that physical illness attributions are associated with poor prognosis in chronic fatigue syndrome...
  13. Dolphin

    Anyone know the studies claiming to show if ME patients believe won’t get better they will not?

    A chronic fatigue study: Psychol Med. 2003 Feb;33(2):283-7. Predictors of outcome in a fatigued population in primary care following a randomized controlled trial. Chalder T1, Godfrey E, Ridsdale L, King M, Wessely S. Author information Abstract BACKGROUND: The objective of this study was to...
  14. Dolphin

    Does stress increase risk of breast cancer? A 15‐year prospective study

    Behind a pay wall: Stress won’t increase your chances of getting cancer https://www.thetimes.co.uk/article/stress-won-t-increase-your-chances-of-getting-cancer-8tnmbp8xc
  15. Dolphin

    Does stress increase risk of breast cancer? A 15‐year prospective study

    https://onlinelibrary.wiley.com/doi/abs/10.1002/pon.4740 PAPER Free Access Does stress increase risk of breast cancer? A 15‐year prospective study. Phyllis Butow Melanie Price Joseph Coll Katherine Tucker Bettina Meiser Roger Milne Judith Wilson Louise Heiniger Brandi Baylock Tracey Bullen Prue...
  16. Dolphin

    Are the effects of cognitive behavior therapy for severe fatigue in cancer survivors sustained up to 14 years after therapy?

    Free full text: https://link.springer.com/article/10.1007/s11764-018-0690-z Some of these researchers are active in the CFS field Journal of Cancer Survivorship pp 1–9| Cite as Are the effects of cognitive behavior therapy for severe fatigue in cancer survivors sustained up to 14 years...
  17. Dolphin

    Video: Support for Caregivers: an integral part of the Circle of Strength

    I saw this in the ME Global Chronicle. I haven't watched it myself. I am interested to hear people's thoughts about whether it is worth sharing. --- WellMe AGM 2017 Guest Speaker Phillida Bunkle HD 1080p Wellington ME/CFS Support Group Published on 18 Dec 2017 Talk in the Blind Spot The...
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