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Ah, I was thinking of the "90% with both cognitive/emotional and physical exertion" bit. You're right; all of them, or nearly, had something recognizable as PEM. This may be a reflection of the number of ppl w/Fukuda who also qualify for IOM or CCC; but it may be a reflection of the fact that...

Still freelancing for Stanford sometimes, and looking into some of those older theories that were never disproved, just... left sitting there, waiting on more money and better interest.

I hope not.

:rofl::rofl::rofl::rofl:

It's in the rulebook. How can you have missed it?

Ongoing, so far as I'm aware. Beyond saying that the SGTC team is still working on it -- and because they're still working on it -- I shouldn't say anything else. :thumbup:

This is infuriating... and demonstrably incorrect, since I was part of athletics programs and could easily compare my level of fitness to that of others. I kicked butt.

Lots of talk about this at the Dysautonomia conference... viewed as a co-syndrome rather than something that 'causes' ME...

I worked like a madwoman, but tbh, there are a few times in my life where I would say I "almost" had ME. Ages 8-9 I experienced a drop in energy with dizziness and focus issues. Ages 12-13, again. Age 12 I was so concerned at my easy fatiguability (no PEM, yet) that I went to my doctor and...

I think I need a little context for this?

Agreed! And I would tend to recommend CCC for that. It nets the smallest group out of the whole, which at least means we're looking at a narrower field. Still no guarantee we're looking at the right thing. But a better chance. One thing I've learned is that a lot of ME researchers have ME...

That's my current, personal strategy, where I have the time to have a conversation. I should specifically point out that this isn't the policy of #MEAction, which aims to use ME in all official communications.

Not ours, please.

I do think it's a flaw in the hardware.

I've gone through a cycle re: the naming thing. I am probably one of few Americans actually diagnosed using the label "ME/CFS" because it was CCC that was used as the dx criteria, and that's what the report calls it. Most Americans are diagnosed with "chronic fatigue syndrome", not ME or even...

I thought of this one just the other day. It's accurate.

Being bedbound for teh gay has a, er... slightly different connotation... I was going to attach a gif but everything I saw just made it worse...

The thing is, whether a thought is helpful may not have anything to do with whether or not it's true. "I have a dreadful illness" is a crappy thought, but labeling that thought 'unhelpful' is to deny reality.

Just read these. The author must have a new article coming out soon, or so I hope.

I'd be shocked if it hadn't been said. OMG. :banghead::banghead::banghead::mad: Denying a biological reality = denying a biological reality, I guess. But you're right -- this isn't really 'funny' in the traditional sense. We're revealing a glitch in our society, an all-purpose coding...