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  1. Hoopoe

    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    How much money was Mayo making from keeping this patient in the hospital against her will?
  2. Hoopoe

    Netflix "Afflicted" - ME included

    It's very telling that psychosomatic disorders begin where scientific knowledge ends. There doesn't seem to be any condition that is well understood scientifically and proven to be psychosomatic.
  3. Hoopoe

    Chapter in The American Psychiatric Association Publishing Textbook of Psychosomatic Medicine and Consultation-Liaison Psychiatry, Third Edition

    Some of data on CBT/GET show a change in beliefs (if we trust the instruments) but no improvement on cardiopulmonary exercise testing, employment, steps per day, or clinically meaningful improvement on walking distance.
  4. Hoopoe

    Chapter in The American Psychiatric Association Publishing Textbook of Psychosomatic Medicine and Consultation-Liaison Psychiatry, Third Edition

    I'm not aware of evidence that CFS and FMS are perpetuated by psychological and behavioural factors. There are many researchers who have been trying to show this, but they don't have anything that's solid evidence. I would summarize their attempts as failure, not strong evidence.
  5. Hoopoe

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    I wonder if dry eyes may be related to low blood volume. Does anyone's dry eyes get moist when they drink salt water?
  6. Hoopoe

    Netflix "Afflicted" - ME included

    "These bastards don't want to get better" comes to mind. Probably a doctor that thinks he knows how to cure patients and doesn't realize it's not working.
  7. Hoopoe

    Biomedical articles on MEpedia - purposes and pitfalls

    I have read a different story about helicobacter, according to which Marshall et al met skepticism and lack of interest at first because everyone knew stress was the cause of stomach ulcers. Maybe everyone knows that ME is just a psychological disorder, as proven by exercise and psychotherapy...
  8. Hoopoe

    Acupuncture, metabolomics and mitochondrial function

    As far as I know, acupuncture studies that control for biased reporting tend to find no effects. Electroacupuncture is probably just electrostimulation with a dubious explanatory model attached to it. I have no problem believing that electrostimulation has an effect on muscles. Similarly, if...
  9. Hoopoe

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    Something that seems odd is that while the normal state of my eyes tends towards uncomfortable dryness, at times they are unusually moist with tear fluid for no apparent reason. Maybe that is normal? Or could indicate a subtle sympathetic/parasympathetic nerve signalling problem?
  10. Hoopoe

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    I often have dry eyes but it's not something I bring up because it's not that important. I have many such minor symptoms, and if I were to mention them all, I would risk being labelled as psychosomatic case.
  11. Hoopoe

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    Background and Aim The clinical association between dry eye syndrome (DES) and chronic fatigue syndrome (CFS) remain unclear with less evidences. We aimed to investigate the relationship between CFS and DES using a national insurance and prospective cohort study. Methods Data from the...
  12. Hoopoe

    Netflix "Afflicted" - ME included

    I haven't watched this but it sounds like it may have done more harm than good. It would have been better if it didn't concentrate on personal lives and treatment attempts so much and focused more on research and attempts to improve the political situation.
  13. Hoopoe

    The European Association of Psychosomatic Medicine (EAPM)

    The author thinks that getting patients to recall different things may lead to a clinical benefit. I am now doubting the author's sanity. They seem to have discovered that patients have symptoms, unlike healthy people. I doubt that these results will advance our knowledge. OD = orthostatic...
  14. Hoopoe

    The European Association of Psychosomatic Medicine (EAPM)

    I looked at the ones where CFS was mentioned. Was not impressed.
  15. Hoopoe

    The Norwegian ME Association publishes survey on rehabilitation services - 2 300 respondents

    I imagine it's a bit like going to the restaurant and having a meal that isn't bad but also not good. The waiter might ask out politeness if the meal was good, and you probably respond out of politeness that it was. The patients can be "satisfied" because they felt that effort was made to help...
  16. Hoopoe

    Effects of unsupportive social interactions, stigma, and symptoms on patients with myalgic encephalomyelitis and cfs, McManimen et al, 2018

    Wessely says that articles in the press endorse a medical model of CFS and reinforce stigma about psychological illness. In my view the BPS model is intrinsically stigmatizing and much of the stigma, at least in medical circles, originates there or from similar ideas about psychogenic illness...
  17. Hoopoe

    The European Association of Psychosomatic Medicine (EAPM)

    A pathetic collection of make-believe articles whose only purpose is to ensure employment for incompetents that couldn't make it in real medicine.
  18. Hoopoe

    Petition to ask government agencies adopt ICC

    This study is nonsense. Patients that agreed with the statement that "exercise brings on my fatigue" on the fatigue severity scale were considered to suffer from PEM. The problem is with the study, not the IOM case definition. Nowhere does the IOM report suggest that this is an appropriate way...
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