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  1. ladycatlover

    Professor Crawley BPSU study - Chronic fatigue syndrome (CFS) Severe children Feb 2019 - 2020

    From the section on Privacy Information Well if they have your NHS number surely they can find your name and address easily enough? :mad: :rolleyes: :eek: Talk about living in an age of surveillance. :sick:
  2. ladycatlover

    Clare Gerada: influence on UK medical practice and ME/CFS management

    At this rate she'll beat her husband to be Her Ladyship before he becomes His Lordship. :yuck:
  3. ladycatlover

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    So does that mean they just read the abstracts? :rolleyes: I'm horribly afraid it does? :mad: If that's the case this is as useless as most other stuff from BPS people. :cry:
  4. ladycatlover

    Cognitive-behavioural therapy v. mirtazapine for chronic fatigue and neurasthenia: randomised placebo-controlled trial (2008) Stubhaug

    So is this a good enough reason to use mirtazapine? Sounds to me like they're just making it up as they're going along. Of course they don't even use CFS, they just say "chronic fatigue". It's a complete muddle.
  5. ladycatlover

    CDC CME for medical providers

    This is a bit off topic, but I just filled in a questionnaire for the UK BioBank (Not the ME BioBank) on Pain and Sensation. It was interesting, not least because some of the questions had a copyright sign at the bottom for Psychosomatic Research (or something like that). It was quite long...
  6. ladycatlover

    CDC CME for medical providers

    So are you going to give them your feedback?
  7. ladycatlover

    Comparison of differential metabolites in urine of the middle school students with CFS before and after exercise, 2018, Chi et al

    OMG that's torture for anyone with ME! :eek: I'd be lucky if I was upright after 30 seconds. :rolleyes:
  8. ladycatlover

    Personality and fatal diseases: Revisiting a scientific scandal, 2019, Pelosi

    Lets hope we don't have to wait that long for our bete noire.
  9. ladycatlover

    Who said: don't bother testing patients?

    Or possibly 15th century? Their raison d'etre seems more priest than doctor. And they have that certainty that they are right that we are lead to believe were beliefs of the clergy back then. Whatever, they are causing harm to us, and to those who are unfortunate enough to have MH issues of...
  10. ladycatlover

    Who said: don't bother testing patients?

    But their field isn't dying - there's a crisis in Mental Health care in UK. Children who are suicidal are having to wait 8 weeks for help (I may be wrong on exact time, saw it on TV the other night and can't maintain figures in memory, but it was quite a long time in terms of suicidal child)...
  11. ladycatlover

    The deadly truth about a world built for men – from stab vests to car crashes

    Not particularly deadly ;) but inconvenient. :rolleyes: 6 foot tall plumber installs shower for 5 foot 2 inch woman. Can't be moved as he's drilled into the newly installed expensive tiles. :mad: Theoretically the shower head is movable up and down, :rofl: but even the lowest possible placing...
  12. ladycatlover

    Government and Insurance companies - establishing the BPS model

    And on amazon uk there's only a single review, giving it one star. Worth taking a look! https://smile.amazon.co.uk/Power-Belief-Psychological-Disability-Psychosocial/product-reviews/0198530110/ref=cm_cr_dp_d_show_all_btm?ie=UTF8&reviewerType=all_reviews
  13. ladycatlover

    UK: PIP appeals - advice, recommendations?

    Maybe I went over the top, but I got all my medical records since I was first ill with ME (around 25 years worth) from my GP practice! Meant my total bundle (including the stuff from DWP) was over 300 pages! I'm not sure that's a very good strategy, but I think I had a kind Tribunal. Though...
  14. ladycatlover

    UK: PIP appeals - advice, recommendations?

    I recommend Fightback4Justice, who are in Bury, but they can help via phone/email etc. I wrote more about them and my PIP experience on your original thread. Hello from South London ETA: It might be worth contacting your MP too. I complained about the Atos assessment and copied my email in to...
  15. ladycatlover

    At last, a Brexit dividend – shame it’s for the pedlars of fake medicine (Feb2019) Elizabeth Pisani

    Criminals now make more money from these counterfeits than they do from illegal drugs such as heroin and cocaine Tue 19 Feb 2019 12.53 GMTFirst published on Tue 19 Feb 2019 10.00 GMT https://www.theguardian.com/commentisfree/2019/feb/19/brexit-fake-medicines-counterfeit-drugs?
  16. ladycatlover

    BMJ Opinion: Amy Price: Patients doing research for themselves, 2014

    That is just so incredibly sad for the inventor. :cry:
  17. ladycatlover

    Survey: online input sought for ME app design (Center for Solutions for ME/CFS at Columbia Uni)

    It was Ghostery wot stopped it - just in case anyone else has the same problem. Thanks @Andy.
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