Search results

It's usually difficult to implement ideas that are wholly fictitious and based on gut feeling. Phrenology had the same problem, as did pretty much all psychosomatic medicine for the past century or so. When after decades of work you only have weak, subjective evidence and everyone has their own...

They've had 2 years to respond to undeniable flaws that discredit the entire review. Meanwhile a flawed review continues to harm patients around the world, something that will be deserving of serious lawsuits in the future as they have shown to be aware of the issues for a long time and have...

This is indefensible. It has been up for years. It is heavily cited as a strong authority source. A review of something that deserves to remain a recommendation should not take this long. If there are such significant problems that it takes so much effort to get it right, there was something...

It's a spade. Spade's the name. Jumping on STOP mats is stupid. Commenting on your feelings while watching yourself on video walking with a shopping bag is bloody stupid. They claim that they can divine our own experience in complete contradiction to what we say it is. It's all damn stupid...

I grok that face and I hate it so much, to know so many others are suffering so obviously. I guess you need to really experience it to believe it. That's a problem. What pisses me off is that every damn physician who falls to it says the same thing and somehow that galactic-sized red flag is...

Questionnaires are definitely preliminary research. Preliminary research is a necessary step, but no serious research with actionable conclusions can avoid having objective measures in medicine. This study is tier 1 research. So is PACE, despite its tier 3 price tag and outlandish promises...

I'm afraid it's going to take a while. Big mistakes take a lot of time to unfold and this is a major one. As long as austerity is an accepted norm not much will change. Those always have a backlash, but it's slow. I think the way forward is to bring more people to speak of their experience. It...

As always, the simple answer is: the rules are made-up and the details don't matter.

I have no idea what she's talking about with XMRV. It was created in the lab? What? And always strawmanning: claiming people were certain that this was it, this was the cause, insistent on it, screaming from the rooftops that this was guaranteed to be it. Why do they have to caricature behavior...

This one: https://s3-eu-west-1.amazonaws.com/pfigshare-u-files/3663015/RS_scienceandsociety_September_2015.pdf. It has two pieces, one by Crawley and one by White.

It seems pretty clear that not having dealt with it has allowed the problem to continue putrefying. We're basically going through Refrigerator Mothers: Part Deux with the perfectionist crap from Chalder and the psychosomatic model of ME is barely any different than the various psychosomatic...

Seems like following their own advice is not a strong suit. I believe this is called non-compliance? Or is it pervasive refusal (to follow one's own advice) syndrome?

Interesting. I'm reading Crawley's bit, most of it is BS, but noted this nugget: "The abuse stopped". That's definitely not what she's been saying since and certainly not what was claimed at the information tribunal or her fake TEDx letter. This is the first time I've seen an account of what...

Hmmm... Let's rephrase that: This entire field of research is literally based on mixing up the flow of causality and coming up with complex alternative explanations to justify how the outcome creates its own cause.

It is one of the most reported symptoms. People who literally do not know what a disease is about cannot be considered competent, let alone experts. These people are completely out of their depth here, they're interested in creating reality, not understanding it. I read the cited comments. They...

This needs to be said more. The architects of this nightmare are dishonest, willing to lie and cheat to promote their self-interest. Of course while they have the benefit of the doubt from eminence-based appeal to authority it won't stick but it's true and as such needs to be said. Sharpe...

Oxford criteria are also self-reported. There is no reason why that point should be ignored. Technically this selection is actually on firmer ground as ME criteria are much more stringent than literally-the-vaguest-possible Oxford criteria. The presence of a physician in the process is...

Not much different from the trials used as evidence for the psychosocial model. Most of them have an unknown number of ME patients, if any. There is no reason why that standard should be selective. It means both sets of studies have limited reliability. Either they exclude all studies with this...

MUS is just rebranded old ideas, some mix-and-match of hypochondria, health anxiety, mood disorders, conversion disorders, whatever. These ideas have been around for well over a century, reformulated but never actually contributing or concluding anything. The field lost most of its patients...

And I would count myself in that 37%... 3 years ago. Not always, but I was able to until then. Now I have bottomed out, have not had a significant remission since then. So that is likely a high estimate as many who can for some time will end up not being able to. Whether this is a natural course...