Search results

  1. Arnie Pye

    Building an evidence base for management of severe ME (including sleep management)

    There is this website : https://www.patientslikeme.com/ Apart from knowing it exists I don't know anything else about it. It does have a section on "Myalgic encephalomyelitis/chronic fatigue syndrome". https://www.patientslikeme.com/conditions/cfs There is also a forum for people with...
  2. Arnie Pye

    Building an evidence base for management of severe ME (including sleep management)

    I don't know anything about severe ME. I particularly don't know how much people with the condition eat, whether they are able to eat, whether they have feeding tubes, what goes through the feeding tubes, or what they eat normally. But assuming that some people with severe ME do eat regularly is...
  3. Arnie Pye

    Article: The alarming hijacking of the BioPsychoSocial model

    It depends on your age whether she could prescribe or not. Melatonin in the UK is only prescribed for adults aged 55 and over. https://bnf.nice.org.uk/drug/melatonin.html I have absolutely no idea what the reasoning is behind this age-based rule. Despite the restrictions on prescribed...
  4. Arnie Pye

    In This Doctor’s Office, a Physical Exam Like No Other (NY Times 8 May 2019) - Commentry by Henrik Vogt

    Are there any sources of printed journalism that aren't, these days?
  5. Arnie Pye

    Memory problems

    Yes I have. I had a severe GI bleed which went on and on and on (for several years)... I suspect I ended up with very low blood volume and various vitamin and mineral deficiencies. I improved with high dose B vitamins and I also took prescription strength iron supplements for a couple of years...
  6. Arnie Pye

    Memory problems

    Deficiencies of vitamin B1 (thiamine) and vitamin B12? They can both cause severe memory impairment. Statins? These can cause global transient amnesia. I've no doubt dozens of drugs can cause memory issues. Check the Patient Information Leaflet for any drugs or supplements you take. It is...
  7. Arnie Pye

    Supplements and activity designed to improve circulation - an experiment.

    Do you know which of your supplements has had this effect?
  8. Arnie Pye

    Discussing acceptance and commitment therapy in ME/CFS.

    I don't know if it is just me, but Acceptance and Commitment Therapy sounds disturbingly like "Accept the Lord into your heart, give your life to Him, and your pain will be taken away." In other words it sounds like religious brainwashing.
  9. Arnie Pye

    Use of antidepressants for/with ME/CFS?

    Anecdotal info : I developed tachycardia when I went on amitriptyline for neuropathic pain. According to the Patient Information Leaflet it is a known side effect. My HR went up to 150 but my BP wasn't affected and was normal. I was put on a low dose of beta blockers (bisoprolol) to slow my HR...
  10. Arnie Pye

    frontiers in Pediatrics: Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome by Boneva, Unger et al 2019

    Hysterectomies are very big business,at least in the US. According to this link : https://www.hersfoundation.org/facts/ When they refer to castration in the above quote they are referring to the removal of ovaries, not the removal of testicles. I should also point out that the website I just...
  11. Arnie Pye

    frontiers in Pediatrics: Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome by Boneva, Unger et al 2019

    Is this a warning shot across the bows of women with endometriosis that their condition is going to be "disappeared" (even further than it already is) under the umbrella of "CFS"? And that women with severe period pains are going to be told they have faulty illness beliefs and they just need CBT...
  12. Arnie Pye

    Prevalence of post-concussion-like symptoms in the general population in Italy, The Netherlands and the United Kingdom, 2019, Voormolen et al

    Doesn't every study these days have to include a mention of symptoms that are potentially of interest in mental health? These are the gateway symptoms that allow doctors to ignore everything else the patient complains of and say that the patient is mentally ill and needs CBT and then should be...
  13. Arnie Pye

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Ah, that is brilliant! Thanks for the link. :)
  14. Arnie Pye

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Captain America theme? Or Ironman? Or Superman?
  15. Arnie Pye

    Use of antidepressants for/with ME/CFS?

    That effect is known as "brain zaps" to people who've suffered from it. Google for "anti-depressants brain zaps" and you'll find loads of info on the subject.
  16. Arnie Pye

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    Yes, Preview works - I just checked. I don't tweet and don't have any desire to either. I've never created an account. I learned how to read Twitter threads without an account a few months ago and now I regularly read publicly posted stuff by some very interesting people.
  17. Arnie Pye

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    You don't have to do anything special to embed the Twitter post. Just paste in the web address by itself and the magic happens when you post. @rvallee has just responded, referring ZH to Hilda Bastian. :) :thumbup: Edit : Cross-posted with rvallee.
  18. Arnie Pye

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    Twitter response from Zoe Harcombe on the Jerome Burne article about ME/CFS. Annoyingly, she refers to "chronic fatigue", as do several people who responded to her tweet.
Back
Top Bottom