@Marky I don't think your going to be able to continue with this. I've tried many times with strength training at home. There is something in our...
Sounds like you are overdoing @Marky and getting accumulation PEM but always important to get your heart checked by a doctor as you have done,...
Patients who are at severe levels of ME (especially) don't want to hear discussion of deconditioning, it's an insult and very distressing to the...
Are the profoundly severe unable to walk to the bathroom? There was a stage during my illness where I could only just walk to the bathroom and...
I don't like using the word 'mild' either. My cognitive symptoms were severe and I was experiencing PEM but I was still able to work in those...
Yes, I was the same. I couldn't bear to be touched. I thought I was going to die many times and I didn't call an ambulance because I was too ill...
Regarding sleep, I had severe insomnia getting only 4 hours sleep and a lot of nights no sleep at all. I was also not able to tolerable medication...
Being allowed to rest. There is not enough rest for the severe types of ME and that is why it takes years to get to moderate. It's a long slow...
Up to page 5 already and I have only read the first post in this thread a few hours ago. I want to post but will have to read everyone's post...
@arewenearlythereyet My brain symptoms in ME are an inability to learn and retain information. I can no longer take in a lot of information,...
@Perrier Thanks for being a wonderful Mum. I have my wonderful Mum with me too. I didn't think I would ever come out of those severe years because...
I wonder if your blood pressure is dropping too low @alex3619 you probably have checked for this though? I'm thinking of you.
This might be too long for some to read. Sorry for this. Yes, there are similarities to having a flu and overdoing and the flu worsens severely....
Very hot sore throat at the beginning of my ME and POTS onset and the same at my very severe onset.
I had just turned 48 when I experienced my first missed period. This hormonal change hit me very hard. I felt weaker physically, more unwell,...
@ScottTriGuy I experienced severe rigors a few years ago. The deep shaking is deeply nauseating. I was also breaking out in a hot sweat all over...
NZ time Saturday 11.A.M. I will donate again in the next few days.
Welcome @Annaiom It was good to hear your experience and I'm pleased to hear you found one that suits. I'm looking forward to getting one now.
Yes, I'll say @Wonko
@ProudActivist Thanks, I'll keep that in mind when I'm trying the chairs out so that I don't get one that is not long enough to rest my feet on...
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