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    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    This might or might not be true. But I see no reason to take their word for it that the change was based on the qualitative findings, especially given a history of not telling the truth about the conduct of the trial. They didn't need to analyze the data to know which way trends were heading and...
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    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    About the school attendance records--this was listed in both the protocols for the feasibility trial as well as the full trial protocol. They didn't report it in the feasibility trial report. They presumably already knew they didn't have the "capacity" to gather those data by the time they wrote...
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    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    wow! what kind of an insane person would devote that kind of energy on such a piece of garbage??
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    Current Research Provides Insight into the Biological Basis and Diagnostic Potential for ME/CFS. Sweetman et al. (2019)

    The journal publisher has previously been accused of publishing so-called "predatory" journals. https://en.wikipedia.org/wiki/MDPI#Controversial_articles
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    Trial By Error: Some Thoughts on MUS and Bermingham; My Letter to Professor Payne

    Hi I'm confused how this would work. You got CBT from this private organization rather than NHS? But NHS covers the cost?
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    Trial By Error: Some Thoughts on MUS and Bermingham; My Letter to Professor Payne

    I can understand that. They have different goals. It's good for me to try to do a mix of both.
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    Trial By Error: Some Thoughts on MUS and Bermingham; My Letter to Professor Payne

    Thanks. I'm sure there are other instances out there as well. I'm sure most don't read the study but just pick up the mistake from previous mis-citations.
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    Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS

    Roughly, the calculated cost (and I'm not endorsing Bemingham et al's figures) was about 3 billion pounds in the year examined. The total NHS budget that year was around 100 billion. The cost of services for those of working age was about 30 billion. So the misstatement makes it seem like the...
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    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    It's been a while but did anyone notice if "later next year" actually happened? It's a bummer that the document isn't OCRed, makes going through it harder than it should. The issue does not seem to have come up in the rest of the minutes that I could see. Lucibee also mentioned that in her...
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    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Hey Richard--can you tell me where in the trial meeting notes this is? I'm trying to write a post about the actometer issue. I see some of the references in the trial meeting notes but didn't see that point being made. The main issue raised as I saw was that the failure to demonstrate any...
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Right. and yet she still let herself get used by the SMC to promote that piece of crap And when I pointed out to her the methodological problems, she misread them and, for a second time, gave the study a clean bill of health. Her actions on this matter have been disgraceful.
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    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    yes, as did I. And I wrote him back thanking him for letting me know. I don't see a reason not to prompt these folks when things seem slow. They don't have a good track record of following up. I'm glad Professor Jones decided, in the end, to take the issue seriously and not continue to downplay...
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    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    this is true and definitely good to remember. however, none of those involved had really earned this trust. nor did Professor Jones with his initial responses. I think being concerned about whether the journal really intended to follow through was warranted.
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    They seem to posting them as they're ready. The special issue of JHP did the same, more or less. The link is to the journal's "latest content"--the last 3-4 days they've all been about biopsychosocial and/or psychosomatics. So I assume the Sharpe/Greco opus will be coming in in next few days...
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    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    This is true of course. But I still think it is important to have a disclaimer that it is not medical advice. Even when you get things right, people misinterpret or over-interpret based on whatever.
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    UK House of Lords/ House of Commons - relevant people and questions

    What is the actual role of this question-asking in government policy-making?
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    UK House of Lords/ House of Commons - relevant people and questions

    That was my initial thought of what you mean as well, actually. The problem is they could say, well, APT was also "therapy" so there was something different about the "therapies" we liked, i.e. CBT and GET.
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    Trial By Error: The Lightning Process Is “Effective”? Really?

    I have tried to give Dr Segal the benefit of the doubt. However, I can also say that I would have thought an expert in the field would have known or heard about the editor's note, given that it's been up for a year. She has not bothered to clarify what happened or what she thinks. the longer she...
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    Trial By Error: A Plea to Fiona Godlee on a Familiar Topic

    Good point. even if you "help" it work you might not be expecting it to.
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