Search results

“Indifference to social reality is, perhaps, more dangerous than outright bigotry.” This, I think, is the crux of it. Sounds familiar in more ways than one, actually...

Looks like it's 84% fixable too: https://www.google.com/amp/s/amp.theguardian.com/society/2019/oct/25/healthcare-algorithm-racial-biases-optum

Looks like it was to do with cost: https://www.google.com/amp/s/www.wsj.com/amp/articles/researchers-find-racial-bias-in-hospital-algorithm-11571941096

Gotcha! Thanks for the clarification.

Also, @Michiel Tack, the survey doesn't specifically mention GET but if you read the questions, it looks like it was trying to ascertain what patients were actually given rather than what they were told they were given. I.e., some clinics say 'pacing' or 'activity management' but mean GET, and...

I think the issue here is that many non-ME-specific services (e.g., pain clinics or rheumatology clinics which only sometimes deal with ME cases) don't feel confident in diagnosing patients. But in my experience, dedicated services typically feel they can recognise 'well defined' cases using...

It's supposed to be used to assess whether one meets criteria for ME (mostly based on the CCC and possibly the ICC with some tweaks). Those using it would be researchers and possibly clinicians. The 'eight-factor domain' roughly corresponds to the symptom requirements for the Canadian Consensus...

Just to be clear, I don't know what their (Cochrane's) protocol says. But they probably do have a rule about which data point counts as long-term follow-up. That's why I was asking.

Many do. In fact, I think therapists do the diagnosing in many cases.

The end points mentioned only go up to about 70-weeks. Does that mean someone forgot to include the 134-week data for PACE? That probably needs correcting if the protocol says to use the furthest end point.

Often GPs don't know. The clinics aren't always well advertised.

Thanks. It will be useful!

Probably not yet. NICE isn't very interested in theories and this is still at that hypothetical stage. NICE wouldn't do replication either. If this becomes more established, then it could be considered either as an exclusionary diagnosis or as a screening test, depending on whether SFPN is...

You must bear in mind that he can't say anything about the NICE process or appear to have rigid views about the evidence that might be considered biased. Luis can't afford to be accused of having prejudged the evidence, in case that weakens his position on the committee or results in him being...

Thanks. Hypothesis is probably less of interest to NICE than clinical trials but I'll certainly look at everything.

Thought this was relevant since @Jonathan Edwards has mentioned gait as a possible diagnostic tool in ME. Link: https://www.alzheimersanddementia.com/article/S1552-5260(19)35120-9/fulltext

Could I suggest that people be allowed to send their comments to you privately? Not everyone wants to post these in a public fashion.

Great. Thanks.

From Wikipedia:

Do you think they were giving them the side-eye?