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[Not a recommendation] I have noted more disclaimers on the Medium blogs, such as this one posted November 9, though I think the Disclaimer text needs to go at the top of the posts: https://medium.com/@jenbrea/how-infection-can-damage-the-cervical-spine-d43d3dac5734 How infection can...

Well, this is ironic:

U.S. coding industry company, ICD10monitor, and Talk Ten Tuesdays have launched a new series, which will continue through November, focusing on the need for the coding industry's early preparation for the new ICD-11 code set. On November 5, the WHO's Dr Robert Jakob participated in an...

Indeed. Irrespective of how a patient's diagnosis may have originally been termed, under the Read Codes Primary Care Terminology System and under ICD-10, CFS, ME, and (B)ME are all coded or indexed to the same code, respectively, Xa01F (Read CTV3); G93.3 (ICD-10); and 8E49 (ICD-11). The...

The Read Code clinical terminology system (CTV3) was used in primary care. The Read Code system has been retired and the mandatory terminology system for NHS Primary Care is now SNOMED CT UK Edition. Under the Read Code (CTV3) Clinical Terminology, the "Preferred Name" was: Preferred Name...

This is extremely concerning.

I'm wondering how long it's going to be before the organization known as #MEAction extends its remit to include all those conditions that Jen considers may be "deeply intertwined with #MECFS, and each other."

But then her view is: Jennifer Brea @jenbrea I also join Walker in saying Lyme, mold, viral infections, EDS, POTS, dysautonomia, MCAS, CCI/AAI, Chiari, etc, this is not a zero sum game. These may all be deeply intertwined. 8:06 AM · Oct 31, 2019 ---------------------------------------...

Well, sometimes she just Blocks those who challenge her.

I honestly do not understand why the Board of #MEAction are not reining her in on social media. Where is the duty of care, as trustees/directors of a 305(c) registered org?

Note the "we are finding..." and the "We think..." Note again the "We're finding..." There was no response from Jen clarifying who is doing all this "finding".

Jen then goes on to say: then:

Shouldn't that have read: If 70-80% of people who check to see if they have a structural/mechanical dx are given a diagnosis of a structural/mechanical problem by the small number of private surgeons who carry out these operations...

From The ME Global Chronicle's Facebook page (Posted 04 November 2019): 12hrs Rob Wijbenga shared a link. Update on the classification of PVFS, ME and CFS for ICD-11 ICD-11 Report One | November 2019 In this important update on ICD-11, Suzy Chapman writes: "Please note that I have retired...

About the U.S. ME/CFS Clinician Coalition The U.S. ME/CFS Clinician Coalition is a group of US clinical disease experts who have collectively spent hundreds of years treating many thousands of ME/CFS patients. They have authored primers on clinical management, have served on CDC medical...

@Binkie4 There was the Sally Crowe Associates/Minerva PRIME Project. There used to be a website for this, but I don't know whether it is still online. https://www.ncbi.nlm.nih.gov/pubmed/20579119 Full paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5060536/...

Thank you, Dr Edwards.

@Tilly @Sarah94 a) Some people report having observed nasty stuff written about Jen on Twitter and on Facebook. b) Some people are very concerned about Jen assuming authority to interpret scans and CFS leaks on public platforms. The former does not negate the concerns about the latter.

I don't see anyone "enjoying putting advocates down" as you put it. I also have a now adult son, sick for 20 years, since the age of 12. What I do see are legitimate concerns being expressed about Jen's MO on public platforms.