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Today I learned that life for diplomats in Havana is basically like WWI trench warfare under heavy artillery shelling. At least that's according to this medical sociologist who totally does not have firm beliefs about mass hysteria. No, it's definitely that all facts point towards that. What...

So it remains that the BPS model doesn't have a fig of evidence for its own claims, has essentially disproven itself with the PACE long-term follow-up plainly saying "no difference in outcome between treatment arms". Zero objective evidence 30+ years after having started recommending it. That's...

The aim is to build an international collaborative research network. There will likely also be expansion into Australia. That's the only way to go. It makes a big difference for tax purposes as well. Lots of philanthropy is about tax avoidance but for that organizations have to be registered...

Yeah those are always cringeworthy. I remember a few old Wessely articles about ME and other older articles about similar psychosomatic ideas, how they are the talk of the town and how culture affects them because everyone is talking about them. All because the people around them are all...

I'm pretty sure it's just a content mill. One study is from 2011 and the Cochrane review is the 2016 version. Though it's not as if laziness like that was not common in real MD's and it's pretty much run-of-the-mill BPS. But it did make its way to be relevant on Google and it reinforces...

Now if only we understood sleep beyond "we sleep because we get sleepy" that would be useful. Though it would definitely be useful to have more research on sleep in ME. But from the abstract it's impossible to tell if it's idiopathic chronic fatigue or anything related to ME. It could be a...

The level of confusion in FND is mind-boggling. It's built on the premise of there being no abnormal physiology and here it is discussing observed physiological abnormalities. It's explicitly defined as aka conversion disorder and hysteria, purely psychogenic. Just call it neuropsychiatry, no...

I'm sorry but this is straight-up delusional. The model claims those interplays, it does not explain anything, merely states so. It's entirely a turtles-all-the-way-down model, moving the ultimate cause of something one order down to something that itself has no explanation. It's the ultimate...

So in response to the fact that this disease has been unprofessionally maligned and derailed by personal opinions that ignore all patient experience, this guy replies with his personal opinion that ignores all patient experience. Couldn't make this stuff up. Literally all people have to do is...

But in practice it is strictly treated as a mental health disorder of trivial consequences, a temporary slight that can be fixed with happy thoughts because "there is no disease". Not just "there is no neurological disease" but "there is no disease at all". It does not matter what the words say...

That's one side of the problem. The other is the 800 identical trials or reviews of "is CBT the cure for CFS" or "is anxiety the cause of CFS". Besides a crisis of replicability, there is another huge crisis of doing the exact same stuff over and over again despite always finding a negative...

Looking at the growing problems of declining life expectancy in the US and how social factors play in, a real problem that does not seem of the slightest interest to BPS folks, who instead are obsessively focused on neo-Freudian garbage, is seriously depressing. There is a real need for a...

Wasn't sure where else to put this but I got it from a Google alert. A "lifestyle blog for healthcare professionals". In the category of "a little knowledge is dangerous", this is a good one. It looks like a content farm, though, not a serious publication. Ironically, one of the linked papers...

The author replied to my comment and learned about ME from Unrest. Advocacy works. A little. But it does.

Someone on the CFS subreddit made a summary of the talk and it has convenient timestamps so here goes. Many thanks for that.

This is very confused and muddled. It could have been moderately competent but it's clear the conclusion was the start and has little to do with, well, anything. The conclusion is strictly an opinion and comes out of nowhere while "hypervigilance" is itself a bizarre framing for poor cognitive...

Yeah I was literally preparing a retort in my head. Pleasantly surprised, especially as it was framed perfectly as the exact same mistake as done with peptic ulcers and MS. There are many comments already so it will probably get lost in the mix but I wanted to give a nod to the nod:

It's not really fair to say it has been studied extensively considering 1) not true, it's largely considered unimportant despite very much being so, 2) absolutely no progress has been made in understanding it and 3) the parenthesis explains why, the concept has been stripped of all meaning and...

30 years of doing the exact same study over and over again. Nobody seems concerned by that. This is not science. It's literally the current clinical paradigm so it's very telling that people who actually believe in the conclusion are not even aware of that fact and still cannot report anything...

It's paving the way for more BPS, which cannot stand on its own merits and needs the bar to be lowered below ground. It is largely centered around the UK, where the massive IAPT reform is also failing on its own merits and needs to be propped up because the people responsible can't accept...