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  1. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Attached are slides for: Chasing metabolic weaknesses in ME/CFS - Ina Katrine Nitschke Pettersen, University of Bergen (file too big, will fix later)
  2. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Attached are slides for: Searching for blood factors changes in ME/CFS - Fredrik Hoel, MD - University in Bergen
  3. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Attached are slides for: Update on treatments in ME/CFS: new perspectives and future directions - Dr. Jesus Castro-Marrero, Barcelona and Cornell Universities (file too big to be uploaded, will try to fix it later)
  4. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Attached are slides for: Characterization of exosomal miRNA in CFS/ME - Anne Rydland, Oslo University Hospital, Oslo University
  5. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Slides from the talks at the research conference are now available and free to share. I'll upload those that are in English. Attached are slides for: Studying known autoimmune risk genes in patients with CFS/ME - Riad Hajdarevic, Ullevål, Oslo University Hospital
  6. Kalliope

    Statnews - BMJ should retract flawed research paper on chronic fatigue syndrome -STAT - David Tuller Dec 2019

    David Tuller encourages in a Facebook post people to leave comments under the article. Here are options for sharing/commenting also on social media
  7. Kalliope

    News from Scandinavia

    Excellent article about ME by psychologist Grete Lilledalen in a Norwegian journal about psychology. For in a psychosocial interpretive framework of ME, the patient's main problem is assumed to be lack of motivation and destructive symptom focus. ME sufferers say that debilitating symptoms are...
  8. Kalliope

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    A response from Carolyn Wilshire and Tony Ward Medical Humanities - Conceptualising illness and disease: reflections on Sharpe and Greco Conclusion The term “illness without disease”, in the sense that Sharpe and Greco use it, is problematic. Its implication, that we must create a distinction...
  9. Kalliope

    Conceptualising illness and disease: reflections on Sharpe and Greco (2019) Wilshire and Ward

    Moderator note This post has been copied and the discussion moved from the thread on Sharpe's original paper here: https://www.s4me.info/threads/michael-sharpe-mind-medicine-and-morals-a-tale-of-two-illnesses-2019-bmj-blog-and-published-responses.9729/page-16#post-224660 A response from Carolyn...
  10. Kalliope

    USA - Mayo clinic

    Merged thread Mayo Clinic's Crappy Website What’s going on at the Mayo Clinic? It has been more than two years since the US Centers for Disease Control and Prevention (CDC) removed cognitive behavior therapy and graded exercise therapy as treatments of choice for the illness it now calls...
  11. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    She also gave this interview with the Norwegian ME Association (haven't watched it myself yet)
  12. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Thank you @Trish for a great summary. I thought she was an MD, and was a bit surprised by some of her advice.
  13. Kalliope

    Trial By Error: The Lightning Process Is “Effective”? Really?

    A Reddit discussion about LP from today. A 17 year old boy describes what he was taught during an LP seminar in Oslo 3 years ago. He went together with his mother who seems to have had a lot of faith in the instructor. Interesting that the instructor suggested he might be too young to...
  14. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    You're welcome. I'm curious on what forum members think of the talk. Some of the recommendations she gives are based on anecdotes.
  15. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Betsy Keller's talk: Living with ME, Strategies to reduce PEM and improve function. Slides of talk here.
  16. Kalliope

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    Elin B. Strand as main author and Ingrid B. Helland as co author is unfortunately a red flag. Helland leads the Norwegian Knowledge Center for CFS/ME and Elin Strand is part of the team. They are known for a biopsychosocial approach to ME. Last year a petition against the knowledge center with...
  17. Kalliope

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Trial By Error: Fiona Godlee Doubles Down on Lightning Process Study Dr Godlee’s letter to me is below. It is disappointing, if not particularly surprising. In this case, BMJ’s abdication of its editorial obligations continues.
  18. Kalliope

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Trial By Error: More Calls to Godlee for LP study Retraction Last last month, I resent Dr Fiona Godlee a letter criticizing BMJ’s decision to republish the Lightning Process study with the same findings. The first iteration, in July, was signed by 55 scientists, clinicians and other experts...
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