Attached are slides for:
Update on treatments in ME/CFS: new perspectives and future directions - Dr. Jesus Castro-Marrero, Barcelona and Cornell Universities
(file too big to be uploaded, will try to fix it later)
Slides from the talks at the research conference are now available and free to share.
I'll upload those that are in English.
Attached are slides for:
Studying known autoimmune risk genes in patients with CFS/ME - Riad Hajdarevic, Ullevål, Oslo University Hospital
Excellent article about ME by psychologist Grete Lilledalen in a Norwegian journal about psychology.
For in a psychosocial interpretive framework of ME, the patient's main problem is assumed to be lack of motivation and destructive symptom focus. ME sufferers say that debilitating symptoms are...
A response from Carolyn Wilshire and Tony Ward
Medical Humanities - Conceptualising illness and disease: reflections on Sharpe and Greco
Conclusion
The term “illness without disease”, in the sense that Sharpe and Greco use it, is problematic. Its implication, that we must create a distinction...
Moderator note
This post has been copied and the discussion moved from the thread on Sharpe's original paper here:
https://www.s4me.info/threads/michael-sharpe-mind-medicine-and-morals-a-tale-of-two-illnesses-2019-bmj-blog-and-published-responses.9729/page-16#post-224660
A response from Carolyn...
Merged thread
Mayo Clinic's Crappy Website
What’s going on at the Mayo Clinic? It has been more than two years since the US Centers for Disease Control and Prevention (CDC) removed cognitive behavior therapy and graded exercise therapy as treatments of choice for the illness it now calls...
A Reddit discussion about LP from today. A 17 year old boy describes what he was taught during an LP seminar in Oslo 3 years ago. He went together with his mother who seems to have had a lot of faith in the instructor.
Interesting that the instructor suggested he might be too young to...
Elin B. Strand as main author and Ingrid B. Helland as co author is unfortunately a red flag. Helland leads the Norwegian Knowledge Center for CFS/ME and Elin Strand is part of the team. They are known for a biopsychosocial approach to ME. Last year a petition against the knowledge center with...
Trial By Error: Fiona Godlee Doubles Down on Lightning Process Study
Dr Godlee’s letter to me is below. It is disappointing, if not particularly surprising. In this case, BMJ’s abdication of its editorial obligations continues.
Trial By Error: More Calls to Godlee for LP study Retraction
Last last month, I resent Dr Fiona Godlee a letter criticizing BMJ’s decision to republish the Lightning Process study with the same findings. The first iteration, in July, was signed by 55 scientists, clinicians and other experts...
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