The very same comments were very popular with the BPS crowd commenting on the Rituximab trial. All valid points. They know those are problematic, they simply choose to waive them off for themselves.
In other news I just printed myself a winning lotto ticket and demand, DEMAND, that it be honored and anyone who suggests I may have been biased in printing myself a winning lotto ticket is a vexatious anti-science bigot.
I have also awarded myself a PhD in Excellence. I wrote the entire...
Not exactly high on the self-awareness scale, uh? It's almost as if it's not helpful at all. And almost as if this only happens in that weird space where psychologists intrude on medicine. So odd. It's literally one dot with spaghetti lines connecting to itself. What a mystery this all is.
The person who answered the question did not understand the question or even the topic of the question.
Doesn't the EU parliament have research staff? This is a very poor response, very low effort.
Has a few quotes from Avi Nath, who is running the NIH intramural research program on ME. No word about funding but the mindset looks on track, Nath's basically saying this is a terrible opportunity but it is an opportunity that should be seized, that by the time ME patients typically interact...
Brutal. And fair. We do not fight. We are being brutalized. We do none of the fighting, only the suffering. This is a war on US. Waged by people whose aims are harmful to us.
A behavior we saw play out in the FINE trial, which posited that "there is no disease, you can aim for maximum recovery":
https://implementationscience.biomedcentral.com/articles/10.1186/1748-5908-6-132
Being emotionally committed to an intervention as a purveyor or researcher of that...
Man with a very prominent platform who calls a population of millions of sick people begging for help a "small vocal minority of very damaging individuals" has favorable opinions on being angry about bad research and health policies.
Not really PACE-related but given his insulting lies...
Monstrous. Just plain monstrous disregard for human life.
Once we pass a tipping point that ends the state of discrimination, it will not be accepted to say they didn't know. They did, and they chose this, as responsible professionals with all the information available to them to make wise...
Uh. Sensing a pattern here. Of sorts. No, that can't be, that would mean IAPT is largely a political project. That would be... yeah entirely consistent with all evidence.
This is a classic problem on which economics is years ahead. When you make the target of manipulation the same as the end...
This is about as valid and ethical as experiments where someone takes participants into a room and tell them that their parents were gruesomely murdered and use that state as a proxy for depression.
Which, in mice, would be quite a feat.
But, no, ME, or even CFS, is not the same as a healthy...
Only as endpoints for definitive evidence. In phase 1 trial to test for feasibility? No problem, it allows for cheap experimentation. But the most that can come from this is the need for more stringent evaluation. To use this evidence in real life, with consequences onto millions, is clearly...
Abstract
I'm posting this mainly because of the interesting discussion on this Reddit thread:
It's an excellent look into the dynamics of the crisis of replicability that inflates meaningless editorialized results into seemingly credible clinical advice, along with very dubious methodological...
Medicine without science looks every bit as bad as it sounds.
This is textbook pseudoscience, it could basically form the basis of a course on what quackery in action looks like, an ideal case study. And as is common with BPS stuff it's not really that problematic that someone pushes woo like...
But you literally provided them evidence that their decision was bogus, providing receipts.
And our BPS overlords scream "WE ARE BEING SILENCED" and are actually taken seriously while this is what actual silencing looks like. What a sick joke. This is politicized science.
Maybe CBT watch would...
This is a great example of the problems with adverse effects monitoring in those experiments. The timeline for observation in this disease is far longer than usual and cannot rely on single points in time, the natural fluctuation of the illness itself demands it.
The people running those...
That's what's going to make a difference. This is something that has to be experienced to understand how intense those symptoms are. It would be VERY interesting to be able to open a dialogue between those cohorts and, for comparison's sake, medical professionals with ME who have been dismissed...
Sorry but that's the tell that the benefits are a total illusion from poorly worded biased questionnaires. The idea that there could be a significant reduction in pain and significant benefits to function with no impact on HRQoL is laughable. If factors highly significant to HRQoL have no impact...
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