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  1. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    The very same comments were very popular with the BPS crowd commenting on the Rituximab trial. All valid points. They know those are problematic, they simply choose to waive them off for themselves.
  2. rvallee

    FINE trial Step test data released in 2017

    In other news I just printed myself a winning lotto ticket and demand, DEMAND, that it be honored and anyone who suggests I may have been biased in printing myself a winning lotto ticket is a vexatious anti-science bigot. I have also awarded myself a PhD in Excellence. I wrote the entire...
  3. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Not exactly high on the self-awareness scale, uh? It's almost as if it's not helpful at all. And almost as if this only happens in that weird space where psychologists intrude on medicine. So odd. It's literally one dot with spaghetti lines connecting to itself. What a mystery this all is.
  4. rvallee

    European Parliament questions

    The person who answered the question did not understand the question or even the topic of the question. Doesn't the EU parliament have research staff? This is a very poor response, very low effort.
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Has a few quotes from Avi Nath, who is running the NIH intramural research program on ME. No word about funding but the mindset looks on track, Nath's basically saying this is a terrible opportunity but it is an opportunity that should be seized, that by the time ME patients typically interact...
  6. rvallee

    News from Scandinavia

    Brutal. And fair. We do not fight. We are being brutalized. We do none of the fighting, only the suffering. This is a war on US. Waged by people whose aims are harmful to us.
  7. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    A behavior we saw play out in the FINE trial, which posited that "there is no disease, you can aim for maximum recovery": https://implementationscience.biomedcentral.com/articles/10.1186/1748-5908-6-132 Being emotionally committed to an intervention as a purveyor or researcher of that...
  8. rvallee

    A general thread on the PACE trial!

    Shorter Richard Horton: Not quite voting but same result.
  9. rvallee

    A general thread on the PACE trial!

    Man with a very prominent platform who calls a population of millions of sick people begging for help a "small vocal minority of very damaging individuals" has favorable opinions on being angry about bad research and health policies. Not really PACE-related but given his insulting lies...
  10. rvallee

    ‘Help Holger now’ video about a Swedish man with very severe ME

    Monstrous. Just plain monstrous disregard for human life. Once we pass a tipping point that ends the state of discrimination, it will not be accepted to say they didn't know. They did, and they chose this, as responsible professionals with all the information available to them to make wise...
  11. rvallee

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    Uh. Sensing a pattern here. Of sorts. No, that can't be, that would mean IAPT is largely a political project. That would be... yeah entirely consistent with all evidence. This is a classic problem on which economics is years ahead. When you make the target of manipulation the same as the end...
  12. rvallee

    Protective Effect of Hemin Against Experimental Chronic Fatigue Syndrome in Mice: Possible Role of Neurotransmitters, 2020, Kumar et al

    This is about as valid and ethical as experiments where someone takes participants into a room and tell them that their parents were gruesomely murdered and use that state as a proxy for depression. Which, in mice, would be quite a feat. But, no, ME, or even CFS, is not the same as a healthy...
  13. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Only as endpoints for definitive evidence. In phase 1 trial to test for feasibility? No problem, it allows for cheap experimentation. But the most that can come from this is the need for more stringent evaluation. To use this evidence in real life, with consequences onto millions, is clearly...
  14. rvallee

    Helping or Harming? The Effect of Trigger Warnings on Individuals With Trauma Histories

    Abstract I'm posting this mainly because of the interesting discussion on this Reddit thread: It's an excellent look into the dynamics of the crisis of replicability that inflates meaningless editorialized results into seemingly credible clinical advice, along with very dubious methodological...
  15. rvallee

    Webcast: (Medically Unexplained) Physical Symptoms: A Scientist Practitioner Approach June 8 Trudie Chalder

    Medicine without science looks every bit as bad as it sounds. This is textbook pseudoscience, it could basically form the basis of a course on what quackery in action looks like, an ideal case study. And as is common with BPS stuff it's not really that problematic that someone pushes woo like...
  16. rvallee

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    But you literally provided them evidence that their decision was bogus, providing receipts. And our BPS overlords scream "WE ARE BEING SILENCED" and are actually taken seriously while this is what actual silencing looks like. What a sick joke. This is politicized science. Maybe CBT watch would...
  17. rvallee

    US- VIDA Integrative Medicine

    :emoji_duck::emoji_duck::emoji_duck:
  18. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This is a great example of the problems with adverse effects monitoring in those experiments. The timeline for observation in this disease is far longer than usual and cannot rely on single points in time, the natural fluctuation of the illness itself demands it. The people running those...
  19. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    That's what's going to make a difference. This is something that has to be experienced to understand how intense those symptoms are. It would be VERY interesting to be able to open a dialogue between those cohorts and, for comparison's sake, medical professionals with ME who have been dismissed...
  20. rvallee

    Cochrane review: Aerobic exercise training for adults with fibromyalgia June 2017

    Sorry but that's the tell that the benefits are a total illusion from poorly worded biased questionnaires. The idea that there could be a significant reduction in pain and significant benefits to function with no impact on HRQoL is laughable. If factors highly significant to HRQoL have no impact...
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