I don't recall reading this before in one of these articles: "People who are asymptomatic or have a mild case of COVID-19 can also face prolonged...
It's absolutely your choice; 'disabled' is, and has to be, a self-definition. When I was first diagnosed, 21 years after becoming ill, I found it...
I think the point of the Chronic Illness Inclusion Project (Leo's on their board) was that the social model can exclude chronically ill people....
Yes, a much better analogy. I describe it to other people as crossing an invisible threshold, or triggering a twitchy signal. A bit like Prof....
I wonder if this has anything useful to say about people who worsen permanently after activity that takes them beyond the PEM threshold, or after...
I never get the PEM sore throat without swollen lymph nodes. Someone once explained that they swell because they've recruited additional blood...
That's really interesting, and has perhaps convinced me a little more that I don't get it. Those two symptoms are the most reliable indicators...
Just watched this morning's broadcast by the UK's Chief Medical and Scientific advisors. No mention of ongoing problems after Covid. In one...
I'm not convinced I can recognise PEM from cognitive activity. I might have to read several descriptions to know whether or not I get it, and...
With regard to anyone else, I don't know. I suspect there are many different patterns. I've got a nearly 45-year history of ME of my own to look...
This makes me wonder why some can recover from accumulated PEM – eventually – whilst others seem to reach that point of no return and never...
For me at least, my underlying level of energy impairment is probably more important. I don't developed additional exercise intolerance (above and...
Me too! It's something I started even as a baby, with my Dad pushing my pram around the Derbyshire peaks with a radio shoved down the side playing...
Interesting! Thank you, I hadn't heard that. I haven't had swim coaching or read about technique and training methods since I got ME in the...
Oh, no – I sympathise, I'm prone to labyrinthitis. Horrible! I hope you're better soon.
PEM just baffles me. There are frequent minor exceptions, where for no obvious reason PEM doesn't match up to effort expended. I've come to...
I think it depends (as always!) on what you mean by 'fitness'. I too can build muscle in my shoulders, arms and core when ME allows me to swim –...
That's why I added 'in addition to'. I think questionnaires need to put more emphasis on the accumulation of daily or weekly activities than they...
There's all that, plus judgement. Whether it's judging how to go through a door frame without colliding with it, how to phrase a sentence without...
The more I read, the more I'm coming to the conclusion that the best way to estimate physical and mental fatigue levels in these studies might be...
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