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Thanks @Gecko .

From Twitter Paper from earlier this year

Some do but are limited by the standard vocabulary used. Some can describe things very well but are not listened to, or their descriptions not drilled down into for appropriate symptom management. Dizziness, breathlessness and gastric issues have only recently been accepted as signs of...

Valerie Eliot Smith blog on draft https://valerieeliotsmith.com/2020/11/19/ice-cream-hypothermia-revisited-a-chilling-nice-consultation-process/?fbclid=IwAR2_KSQC48mInYTjuXT7-isNWf38t8DDpSMbLYL8DOltfxBgQP_pIjXdlYU

Young pwME adopt the language from medical interventions and online sources. The younger the more likely to assimilate given language into developing verbal and experiential constructs. Your world view is framed by interaction and experience. You would not recognise ME from descriptions on...

What % are female ? Sounds like classic label attaching when cause is not known and medics don't know what else to do.

Lower HRV has been postulated as a " heads up" for illness generally ( viz the wearables guru who was alerted to Lyme disease during a flight when HRV was altered enabling this to be caught early and treated) .If there are noted changes in network metrics, and autonomic status then perhaps there...

Hmmm. Do we know how colour temperature affects human cells? We know a bit about blue light, and use of blue glasses , but anything else? Coloured LEDs are transforming agriculture, enabling modulation of yield, ( in cannabis growing its used re strength of THC), rate of senescence , growth...

Check out Maryanne Demasi

Thank you @Dx Revision Watch

So given the general debunking of CBT for many uses it looks like a reinvention heading towards ACT to maintain market share

That's true, however even reducing the time needed in an office to on e a week / once a fortnight etc may offer more possibilities. I think COVID19 has accomplished in less than a year the digital working revolution Google and Microsoft etc have been trying to promote for years. It is however...

Does " based at " have specific relevance anymore ? If we embrace tech a bit more this could have far wider applicability and opportunities perhaps for someone with mild ME. The only thing I have had to go to our office for since March is to pick up large format drawings and specialist survey...

Depends on how you define " cure"

How does the dosage compare to doses for depressive conditions? ETA ages ? Were any side effects observed at particular points in menstrual cycles? Did any participants gave gut issues ? Estrogen and seratonin are closely linked, and some gut bacteria can " repackage" compounds including...

:banghead:

From the quick response from SMC too, I would suspect a briefing prior to guidelines release

there will be a lot of decent GPs, OTs and physios now at a complete loss. NICE has always been the default and this is not a small change. I don't know if there will be any "penny drop" moments, but many professionals may need some positive support as well as education - I just hope for GPs it...

I suspect MOD are interested re GWI - it is still a big issue here

Ah , the infrastructure to maintain ...