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  1. TiredSam

    The use of the labels ME, CFS, ME/CFS

    ME-International Board of Directors: James Lutey, David Steckel, Mary Kelley, Colleen Steckel Board Members: Pam Lutey, Jennifer Caldwell, Janet Flynt, Bazia Zebrowski 501(c)(3) nonprofit - United States Global Advocates for MEICC (GAME) "Our effort in this group is to recognize that ME is...
  2. TiredSam

    The use of the labels ME, CFS, ME/CFS

    And the "ME Vereniging Nederland" is who exactly? According to Wikisage: So he's quoting himself as an authority. And when Wikisage says "the national patient organization for ME in the Netherlands", is it really? So what is M.E. Centraal? https://mecentraal.wordpress.com/ And who is...
  3. TiredSam

    The use of the labels ME, CFS, ME/CFS

    For those who don't want to wade through it:
  4. TiredSam

    The use of the labels ME, CFS, ME/CFS

    Your new source, the 2019 international English Language version https://icd.who.int/browse10/2019/en#/G93.3 is different to the source you referred to in post 148: So let's look at both those sources and I'll explain why they are irrelevant and of no practical use to me. The international...
  5. TiredSam

    The use of the labels ME, CFS, ME/CFS

    Incorrect. https://www.icd-code.de/icd/code/G93.3.html That's going to be hard. My diagnosis is signed by Dr Scheibenbogen at the University Hospital in Berlin (Charite). I found them to be excellent, and there's nowhere else to go to in Germany except expensive private doctors offering the...
  6. TiredSam

    The use of the labels ME, CFS, ME/CFS

    My diagnosis is: Chronic fatigue syndrome (CFS) (G93.3)
  7. TiredSam

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    I fell off my bike about 10 years ago. An MRI scan showed that I had a "bone bruise" in my wrist. The doctor told me that "bone bruises" weren't visible until MRIs, so before then I would have been accused of malingering.
  8. TiredSam

    Psychosomatic medicine and the psychologising of physical diseases

    And seeing as psychomatic illness does not exist, they must be misdiagnosing an awful lot of sufferers of something else to keep their devoted team of 60 busy. Long may I be spared their devotions.
  9. TiredSam

    Psychosomatic medicine and the psychologising of physical diseases

    To be even fairer, fringe crackpots in Germany should not be underestimated. They are running this place: https://www.klinikum.uni-heidelberg.de/en/kliniken-institute/kliniken/zentrum-fuer-innere-medizin-krehl-klinik/department-of-genereal-internal-medicine-and-psychosomatics/about-us They...
  10. TiredSam

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    When I read "embodied memories" it reminded me immediately of the explanation for homeopathy, ie that water retains a memory of whatever has been diluted out of it. Perhaps having the substance in it before it was diluted 30,000 times is an unhappy memory from its childhood which the water has...
  11. TiredSam

    Opinion piece: "Am I disabled?" by Joanne Limburg

    The last time I went to the UK was via ferry, I was worried about getting out of my car and having to go up all those stairs they have on ferries. Stairs are an absolute bugger and I avoid them whenever possible, and the last thing I wanted was a boatload of people behind me getting more and...
  12. TiredSam

    Dr. Kenny DeMeirleir was issued a world patent on a new CFIDS discovery, the increase of asparaginyl beta-hydroxylase (ASPH)

    https://www.s4me.info/threads/red-lab-belgium-experiences.14061/#post-252193
  13. TiredSam

    Dr. Kenny DeMeirleir was issued a world patent on a new CFIDS discovery, the increase of asparaginyl beta-hydroxylase (ASPH)

    Nope, it's him. He holds lots of patents for various tests and treatments, and is associated with various companies which supply each other and refer patients to each other. Last time I looked into it (quite a while ago) he referred people to R.E.D Laboratories which he or his wife had an...
  14. TiredSam

    ‘Girl in the Window’ From award-winning author Penny Joelson

    This is how the book has been received: School Library Journal said: “A great, fast-paced thriller for younger teens.” Girl in the Window has won the Lambeth Phoenix Book Award 2020 and the NE Book Award 2019! It has also been shortlisted for the Girls Day School Trust Book Award 2020. It...
  15. TiredSam

    Lightning Process study in Norway - Given Ethics Approval February 2022

    If the effect isn't maintained over time, that will be proof that LP works, but needs to be applied continuously. Need I say more squire? A nod's as good as a wink to a blind horse.
  16. TiredSam

    BPS attempts at psychologizing Long Covid

    Regarding Morgan, I have just read @dave30th two blogs on the matter, which as ever are excellent. However he is more generous to Morgan than I would be. I agree that everyone can get things wrong. It's how they react next that's important. From Morgan's tweets I've seen so far, there is no...
  17. TiredSam

    BPS attempts at psychologizing Long Covid

    The Morgan piece is still available online here: https://www.theguardian.com/world/2020/nov/29/eleanor-morgan-is-still-struggling-with-long-covid-months-after-catching-the-virus It's still listed among Morgan's articles if you search under her name at the Guardian website. As has been noted...
  18. TiredSam

    BPS attempts at psychologizing Long Covid

    That phrase from Eleanor Morgan has a very familiar ring to it. As for Tomlinson, he seems to have an extremely patronising view of his socially deprived patients. A bit like Wessely's self image - far to good for this but I'm such a nice chap I'm prepared to waste my talents on these poor...
  19. TiredSam

    DecodeME - UK ME/CFS DNA study underway

    It's not an important point.
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