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Not an immediate solution but the first thing that comes to mind. I'm assuming the ear pieces are connected by a piece that goes over the head? If you've got something wider than your head - maybe the arm of a sofa or several cushions wedged together and put the defenders on that & leave then...

It's a fair point. Maybe your body was "primed" by previous exposure to infection? Maybe it's not just that there were multiple exposures of any pathogen at the same time but it's how those pathogens affect the body and the cumulative effect they have?. Maybe previous exposure to something...

This is fascinating, isn't it? One of the problems with cognitive problems like this is that they happen when we aren't in the best position to observe them. So it's very hard to describe or recall what's happened. In the early years I had doctors and people who were genuinely trying to...

Exactly. This leads back to a reluctance to understand and acknowledge that not all fatigue is the same & won't respond in the same way to similar treatments. What they could have looked at (& I haven't waded through the whole thing) is if workers who are at risk of burnout through excessive...

I know, it's a complete travesty, the the reverse of how the system should work. An expensive travesty. I'm not convinced it wouldn't be cheaper to treat disability claimants more honestly and fairly. Is it though? I should be eligible for PIP and admittedly haven't tried to claim again...

Given the paltry amounts disability benefits payout I doubt it's cost saving. I would really love to see the figures. Exactly how much does each ESA & PIP assessment cost? Especially, if you add on the cost of tribunals. Was it really cheaper to outsource it? Why is it so difficult to find...

Yes, but only outsourcing in certain sectors it would seem. I have worked for an outsourcing company in a completely unrelated field. Your performance as an employee is closely monitored, even as someone who had a very technical role your ability to build a rapport and a relationship of trust...

Absolutely & with personal consequences for them if they lie or misrepresent plus consequences for their employer too. A claimant caught lying will face the consequences so why shouldn't there be consequences for an assessor?

Like political history, the roles different countries have adopted in the evolving history of ME or CFS have often been subject to outside influence. The US influenced the UK and the UK in turn influenced the US. It may be that the NHS and Benefits and Welfare system in the UK made it a...

I suspect that happens a lot. Certainly a lot of people seem to say it's happened to them. As a system this is wide open to abuse. If some assessors are prepared to misrepresent or lie about claimants then what's to stop those same assessors lying by claiming the equipment isn't working? If...

Just wondering if anyone who tweets fancies responding to Dr Strain and telling him the interview and his comments after have been discussed on here and we're grateful to him for putting the record straight. Maybe he'd like to pop in to the forum and have a look?

That the problem with "fatigue". Everyone thinks they understand it and they do understand their own experience of it, they just don't always have the insight to realize that not all "fatigue" is the same. There's normal fatigue, there's the fatigue that comes with some conditions but may...

Well spotted @Kitty. It's a shame they stuck that at the bottom as there's a fair chance that those of us who just don't have the resources to go reading stuff that isn't relevant to us won't get that far. Once again, probably the more severely affected & most in need of support.

No, I don't have a separate diagnosis, it's just part of ME. I had a lot of problems with the DWP. For the first year or so they wouldn't even let me apply for Incapacity Benefit, now ESA. I did have a go at applying for PIP when it was still DLA and was turned down. I strongly suspect I...

:rofl::rofl::rofl: Time for a nap, I think!

Yes. One of the reasons I rarely wander off on my own. One of the main reasons I thought I was losing my mind when I first became ill. I moved to the UK before SatNav was a thing and, with just an AA road atlas to hand, was despatched to customer sites all over the bottom half of the UK, not...

Yes, while I applaud their efforts they seem to be in danger of missing a crucial point - Because we have been so badly treated, our disease so poorly understood, the previous NICE guidelines were so bad most of us stay away from our GPs in droves. I know when I go I don't actually mention...

Yep. Not really getting the concept of a fluctuating condition there are they? If you could just write up a nice timetable and keep to it, there wouldn't be a problem, now would there? It's like sleep hygiene for a condition where there is underlying issues with sleep. Expecting sleep...

I'm glad you got help and support. I sought help and contacted Citizen's Advice, the DWP, and talked to my employer explaining that I was really struggling (I was having to give up work by then). Not one of them explained there was any facility to help me at all. Even though I specifically...

Oddly, it doesn't leave a mark. Quite annoying for it to be so sore & nothing to show for it!