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  1. rvallee

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    The continued pretense that this is all new is getting beyond frustrating. It's blatantly false and maintained only because admitting otherwise means revealing decades of failure. The omerta is too obvious. But the problem remains of how can journalists cover this and inform the public when...
  2. rvallee

    Supportive armchair?

    For what it's worth: I hate that chair with a passion. Had to content myself with it for over a year because it was cheap and it's way too uncomfortable for a chronic pain body. The armrests especially hurt without padding.
  3. rvallee

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I'm totally confused as well. Is there going to be yet another delay?!
  4. rvallee

    News from Scandinavia

    This is a great line, it really captures how everything is whitewashed since they either got approval to cheat or were arbitrarily cleared of even "zero tolerance" faults. Legal abuse of statutory authority or misconduct is first and foremost legal, everything after that becomes irrelevant if...
  5. rvallee

    Beyond Statistical Ritual: Theory in Psychological Science

    It's honestly hard to escape the fact that essentially the BPS ideologues are studying themselves, their own interpretation and perception. We are not relevant or even considered in their work, only the distorted narrative they tell about themselves and the role of medicine dealing with its own...
  6. rvallee

    News from Canada

    This is better than nothing but this is all stuff that should have been out on day 1 and it's basically 1 pamphlet and 1 video that provides no information beyond what has been known (and dismissed by medicine) for decades. That after 16 months we are still at the exact same spot is simply...
  7. rvallee

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    That's one of the things I frankly don't understand here. Most of the organizations have absolutely no stake in this, it doesn't concern them one bit. But then again there are many things that are beyond understanding in how this is happening...
  8. rvallee

    Bridget Mildon - patient advocate for Functional Neurological Disorders

    She rejects the conversion disorder but ended up pushing the conversion disorder with a different name invented explicitly to mislead that it's not? Wow, OK. That's weird. 0 on self-awareness but a 11 on self-weirdness.
  9. rvallee

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    As journalism goes, this is a terrible piece, one of the worst ones so far and a disservice to the public. It's too conflicting to have to push an alternative reality that can't be reconciled with reality. The message is obviously being pushed top-down. But then again, how are science...
  10. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    It would more accurate to describe them as lobbyists but whatever the framing is fair and they are behaving exactly as they accuse of. Scathing and fair piece. It really is important to point out that this study was completely unable to inform anything and had nothing to do with science, it was...
  11. rvallee

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    I'm not going to bother linking to it but I saw that Phil Parker posted an article saying that researchers "found" differences between CBT and LP. Which did make me laugh, so at least there's that. Yes, a paper documenting the differences between two similar things, found differences, which is...
  12. rvallee

    Tell Your Representative to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

    I still haven't seen any work coming out of the CDC in the last several years that even amounts to $100K. I'm not sure that's a good idea without there being oversight on what they do with it, which appears to be nothing. The only work products I have seen in the last 5 years are a small update...
  13. rvallee

    News from Scotland

    Weird that he appears not to blindly trust Wessely, who seems OK with this and probably reassures anyone who wants to hear that this is a problem perfectly under control.
  14. rvallee

    International online survey of 1048 individuals with functional neurological disorder, 2021, Butler, Stone et al

    Haha, yeah. This reminds me of people who post fake genius quotes from their kids to social media. They tooootally said this spontaneously, you didn't put those words in their mouths. Literally nobody cares about "conceptualizing" their illness, this is as much horseshit as pretending most of a...
  15. rvallee

    Reversals in psychology, 2020, blog by argmin gravitas

    Honestly I think that's one of the reasons why it crept this far. It's completely unbelievable when you explain to people that medicine could take this seriously if it's just as described. And that's on top of how unbelievably cruel and immoral the general neglect of this disease, which is also...
  16. rvallee

    A general thread on the PACE trial!

    My typo indeed. Morality is so much more flexible than mortality. Patient dead? Can't argue with that. Immoral negligence? Can be endlessly argued as "for our own good", or that actually it's all good, no complaints recorded, it's not allowed. Frankly anything that requires this much individual...
  17. rvallee

    Reversals in psychology, 2020, blog by argmin gravitas

    No kidding but a well-made animation showing what it actually is would probably get more across than hundreds of scientific papers. Just what it is. Nothing more. This is one of those things that are maximally absurd when you just neutrally list what it is without any emphasis, the absurdity...
  18. rvallee

    News from Canada

    How to do something without helping. The important thing is completely down to chance, and almost always useless. I had a GP when I got ill. Zero help. I have a GP now, who diagnosed me. Also zero help. But sure, let's add money to the thing that is not able to help, surely that will help. They...
  19. rvallee

    Self-help interventions for young people with persistent physical symptoms: A systematic review, 2021, Holsting et al

    I love it when the highlights just completely contradict themselves. It's both useless and needed. Makes as much sense as useless and cost-effective.
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