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Ah, yes, thanks @Simbindi , I see I was looking at a "petition update" page, which by itself isn't very persuasive. I thought it was a second one, I already signed this one yesterday. Original page: Petition · Don't let vested interests perpetuate harmful treatments for ME/CFS! · Change.org...

I'm not sure what the petition is for, apart from venting. It doesn't have a goal like e.g. #ReleaseTheGuidelines based on clear arguments like it's not in patients interest and against NICE procedure to do this, and it was forced from outside against scientific analysis. What does it want to...

Indeed. I would not call this "opaque". Jonathan Edwards is presented as an expert in clinical trials, and then by (weirdly) placing the word NICE instead of e.g. "those" in his remark it refers (or seems to refer) directly to the NICE review being "deeply flawed". Even more so because the...

"CBT....should only be offered to support patients in dealing with the anxiety of being ill." (Italics mine) If that is what the end text will say then the BPS crew has had their weasle point put in. That's will be the angle. Or, if not altered, then it will be the angle in the expected media...

CORRECTION ( @FMMM1 ): She was health minister and vice prime minister for 8 years until 2002 after which she took positions as president of the dutch health council comittee (in which capacity in '05 she undertook the media campaign with grotesque and stigmatising disinformation to accomodate...

This sounds like the stuff I'm reading from the Wessely School, Maudsley Hospital and Oxford psychiatry department in the 80s, so it's at least as "new" as the walkman. Unsubstantiated derogatory prejudice dressed up as science.

Content Warning: discussing some nasty theories surrounding CBT. If you're not in the mood, just skip. I think I can say something about that. I'm researching the earliest years of the Wessely School (which is also why I on here way less than I had previously planned and anticipated when I...

@Barry , I was just thinking about your "bias-grounded-intervention bias". I'm not sure if the word "bias" is applicable here. The aim is to align the patient's perceptions with what the therapist deems "healthy/normal". It would be a perception-altering intervention bias. Given the very low...

Fun with reference juggling! The reference in Hawtons piece to substantiate what he says about "avoiding an artificial mind-body dualism" (reference 15, Jennekens & Van Gijn), what is nothing more than a the turf claim, mentions that dividing the organic and psychological factor is artificial...

@FMMM1 It is explicitly stated by the dutch branch of the psychosomatic enterprise that the goal of CBT is to stop CFS patients labelling themselves as such. A physical explanation would get in the way of that. (And it would get in the way of the smoke-and-mirror legitimacy of The Product CBT)...

This exactly. It is actually a topic I am collecting information about for a possible article. The similarity between some of the the tactics of domestic abusers and those applied by the Wessely School bunch are unmistakeable (isolation, gaslighting, sadistic abuse etc.), both as part of the...

As a non-expert in research methodology, I'd say it is. An explicit term for it is especially needed for dutch bps research, as influencing the participants is part and parcel of what they do. (It's of course also so for the UK papers, but I get the idea they are usually a bit more circumspect...

@Snow Leopard You're trying to makes sense where there isn't any. The point isn't consistency or to express knowledge based on a solid foundation. The point at this stage is getting their profession/themselves acknowledged as valid participants in "CFS" research and treatment, which evolved into...

Well hello there mr Kendell: From "Postviral fatigue syndrome: time for a new approach" in the debate section of the BMJ by David, Wessely, Pelosi, 1988 (Which also thanks Peter White for his helpful advice.)

There's a LOT that can be said about this paper (and a lot to unpack), so I'm not going into all that now, but I want to make the following additional remarks to it: 1. Hawton was active in The Netherlands at this time. He was was working as a Boerhaave Professor of Consultative Psychiatry at...

Translation of the figure of the model: 'Oorspronkelijke oorzaak' = 'original cause' Klachten (b.v. moeheid, spierpijn, depressiviteit) = Complaints (e.g. tiredness, muscle ache, being depressed) Overtuigingen (b.v. 'ik ben ziek', 'ik moet rust houden') = Convictions (e.g. 'I am ill', 'I have...

Literature 1. Sharpe MC, Archard LC, Banatvala JE, et al. Guidelines for the conduct of research into the chronic fatigue syndrome. JR Soc Med 1991;84:118-21. 2. Lloyd AR, Hales JR, Gardevia SC. Muscle strength, endurance and recovery in the post-infectious fatigue syndrome. J Neurol...

While researching the origins of the ideas regarding ME, I came across this paper. I'm going to post it in full, translated, because I think it's also a document of key importance for UK researchers interested in the history of the Wessely School's ideas about ME. It appeared in Nederlands...

I'm really sorry that happened to you @glennthefrog . It's only "truly odd" when you think about it from a normal, factual perspective. There is no reason or proof that support groups are bad for you, they are even actively encouraged in a lot of patient groups, because they can be a great...

Another source: in June 1988, A. Scott from the ME Association London/Richmond and E.M. Goudsmit, Teddington (Engeland) wrote a response to two articles in the Dutch Journal of Medicine (NTvG). Link to their response It shows that in 1988 patient support groups were already busy...